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Best Of
Re: Some news from me
We're all really going to miss you @Katie, you've been so lovely to everyone here and I really appreciate all the support you've given us. I wish you the very best with your new role, and also, have a very good Christmas 
Re: Some news from me
Omg Katie I going to miss you tons on here. You've been such a lovely kind personality I will miss you lots.
Amy22
4
Re: account approval.
hi @TheMix thank u for explaining. it just seemed strange that i was able to post but my account hadn't already been approved by that stage.
eabhax06
2
Some news from me
Hey Community,
I wanted to share some news with you, which is that I’m going to be leaving the Community Team in January, and will be moving to another team here at The Mix/MHI. I’m super excited to get started in my new role, but as you can imagine it comes with a bunch of mixed feelings too!
Leaving Community feels incredibly strange, as in total I have volunteered and worked here for over four years. In that time I've learned a huge amount about myself, you folks, the challenges you face, and just how powerful online connection can be.
I feel extremely proud and lucky to have been a part of this space, and to have played even a small role in some of your journeys. It’s been a really precious experience seeing you consistently show up for each other, hold space, and treat each other with genuine care and consideration. You’re each on your own path, and even when your experiences differ, you still listen, support and look out for each other. That’s incredibly special.
This Community wouldn't be what it is without you folks, and I'd like to gently remind you to keep reaching out here. You deserve support, to be heard, and to feel connected.
My final day won’t be until the new year - I just wanted to share this with you now as I'm mindful I have a few days off coming up and I also wanted to share this before the Christmas rush! So, if I don’t chat to you before the new year, please take good care of yourselves. It’s been a huge pleasure being a part of this.
I wanted to share some news with you, which is that I’m going to be leaving the Community Team in January, and will be moving to another team here at The Mix/MHI. I’m super excited to get started in my new role, but as you can imagine it comes with a bunch of mixed feelings too!
Leaving Community feels incredibly strange, as in total I have volunteered and worked here for over four years. In that time I've learned a huge amount about myself, you folks, the challenges you face, and just how powerful online connection can be.
I feel extremely proud and lucky to have been a part of this space, and to have played even a small role in some of your journeys. It’s been a really precious experience seeing you consistently show up for each other, hold space, and treat each other with genuine care and consideration. You’re each on your own path, and even when your experiences differ, you still listen, support and look out for each other. That’s incredibly special.
This Community wouldn't be what it is without you folks, and I'd like to gently remind you to keep reaching out here. You deserve support, to be heard, and to feel connected.
My final day won’t be until the new year - I just wanted to share this with you now as I'm mindful I have a few days off coming up and I also wanted to share this before the Christmas rush! So, if I don’t chat to you before the new year, please take good care of yourselves. It’s been a huge pleasure being a part of this.
Katie
11
Re: Some news from me
Aww Katie I’m sad to hear this but I wish you all the best in your new role and for the future. I am going to miss our chats on a sunday about what we’re having for tea. Hopefully we will chat before new year but if not, take care and I hope everything goes well for you 
Re: Anybody want to vent or chat about anything? w/c 08.12.25
Doing a 10-10 shift all day this week 😭
River
4
Conditions affecting my life.
I know I spoke a bit about this earlier but I want to talk about it in slight more detail. I hope it doesn't bother any of you that some of it is repeated.
I have a condition called Epilepsy. I experience multiple types of seizures- tonic clonic, focal, absence, and myoclonic.
This affects My daily life, I am at risk of status epilepticus due to how often they happen and how they can often end up being prolonged so I need an ambulance.
I am on such a High dosage of medication, I take 1000mg twice a day and I still experience odd seizures but my epilepsy specialist won't do anything and keeps telling me that the ones I am having aren't serious. I have asked them to change my medication as the one I am on clearly isn't working but they have refused and they have also refused to give me rescue medication to avoid me going into status.
Before long my epilepsy will take away everything, it already has changed my life from the day I was diagnosed, I had to change my career slightly and that hurt me so much. A lot of jobs refused to take me because of my condition aswell. My epilepsy can also affect my memory.
I am so fed up and I really wish I didn't have this condition. I get upset about how hard life is, and how horrible this condition is.
I also don't just live with epilepsy, I live with so many other conditions too that affect my daily life. Such as my vision impairments. I have a nystagmus that causes my eyes to move uncontrollably which leads to things being very blurry for me. I also have another eye condition, I am not sure on the name as they are so hard to remember spellings of, but it affects the nerves at the back of my eyes, I have to get frequent checks as I can go completely blind at anytime.
I also have hearing impairments, I am completely deaf in one ear and partially deaf in the other. I get ear infections very often due to a bone that is damaged in my ear and due to a hole going all the my through my ear drum. I am awaiting surgery to hopefully help and make me have less infections but they can't do the surgery until I no longer have an infection. I let them know that I no longer have an infection and by the time they book my surgery I get an infection again.
I also have a condition that affects my feet. I can develop extreme pain to the point where I cannot walk. I have been given some specialist equipment to use to help avoid the condition flaring up but it does still happen.
I also have Autism, A social anxiety disorder and PTSD. I am not going to get into those though. I am more down about my epilepsy than anything else.
I have a condition called Epilepsy. I experience multiple types of seizures- tonic clonic, focal, absence, and myoclonic.
This affects My daily life, I am at risk of status epilepticus due to how often they happen and how they can often end up being prolonged so I need an ambulance.
I am on such a High dosage of medication, I take 1000mg twice a day and I still experience odd seizures but my epilepsy specialist won't do anything and keeps telling me that the ones I am having aren't serious. I have asked them to change my medication as the one I am on clearly isn't working but they have refused and they have also refused to give me rescue medication to avoid me going into status.
Before long my epilepsy will take away everything, it already has changed my life from the day I was diagnosed, I had to change my career slightly and that hurt me so much. A lot of jobs refused to take me because of my condition aswell. My epilepsy can also affect my memory.
I am so fed up and I really wish I didn't have this condition. I get upset about how hard life is, and how horrible this condition is.
I also don't just live with epilepsy, I live with so many other conditions too that affect my daily life. Such as my vision impairments. I have a nystagmus that causes my eyes to move uncontrollably which leads to things being very blurry for me. I also have another eye condition, I am not sure on the name as they are so hard to remember spellings of, but it affects the nerves at the back of my eyes, I have to get frequent checks as I can go completely blind at anytime.
I also have hearing impairments, I am completely deaf in one ear and partially deaf in the other. I get ear infections very often due to a bone that is damaged in my ear and due to a hole going all the my through my ear drum. I am awaiting surgery to hopefully help and make me have less infections but they can't do the surgery until I no longer have an infection. I let them know that I no longer have an infection and by the time they book my surgery I get an infection again.
I also have a condition that affects my feet. I can develop extreme pain to the point where I cannot walk. I have been given some specialist equipment to use to help avoid the condition flaring up but it does still happen.
I also have Autism, A social anxiety disorder and PTSD. I am not going to get into those though. I am more down about my epilepsy than anything else.
Re: Anybody want to vent or chat about anything? w/c 08.12.25
Aw that's good




