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Best Of
Conditions affecting my life.
I know I spoke a bit about this earlier but I want to talk about it in slight more detail. I hope it doesn't bother any of you that some of it is repeated.
I have a condition called Epilepsy. I experience multiple types of seizures- tonic clonic, focal, absence, and myoclonic.
This affects My daily life, I am at risk of status epilepticus due to how often they happen and how they can often end up being prolonged so I need an ambulance.
I am on such a High dosage of medication, I take 1000mg twice a day and I still experience odd seizures but my epilepsy specialist won't do anything and keeps telling me that the ones I am having aren't serious. I have asked them to change my medication as the one I am on clearly isn't working but they have refused and they have also refused to give me rescue medication to avoid me going into status.
Before long my epilepsy will take away everything, it already has changed my life from the day I was diagnosed, I had to change my career slightly and that hurt me so much. A lot of jobs refused to take me because of my condition aswell. My epilepsy can also affect my memory.
I am so fed up and I really wish I didn't have this condition. I get upset about how hard life is, and how horrible this condition is.
I also don't just live with epilepsy, I live with so many other conditions too that affect my daily life. Such as my vision impairments. I have a nystagmus that causes my eyes to move uncontrollably which leads to things being very blurry for me. I also have another eye condition, I am not sure on the name as they are so hard to remember spellings of, but it affects the nerves at the back of my eyes, I have to get frequent checks as I can go completely blind at anytime.
I also have hearing impairments, I am completely deaf in one ear and partially deaf in the other. I get ear infections very often due to a bone that is damaged in my ear and due to a hole going all the my through my ear drum. I am awaiting surgery to hopefully help and make me have less infections but they can't do the surgery until I no longer have an infection. I let them know that I no longer have an infection and by the time they book my surgery I get an infection again.
I also have a condition that affects my feet. I can develop extreme pain to the point where I cannot walk. I have been given some specialist equipment to use to help avoid the condition flaring up but it does still happen.
I also have Autism, A social anxiety disorder and PTSD. I am not going to get into those though. I am more down about my epilepsy than anything else.
I have a condition called Epilepsy. I experience multiple types of seizures- tonic clonic, focal, absence, and myoclonic.
This affects My daily life, I am at risk of status epilepticus due to how often they happen and how they can often end up being prolonged so I need an ambulance.
I am on such a High dosage of medication, I take 1000mg twice a day and I still experience odd seizures but my epilepsy specialist won't do anything and keeps telling me that the ones I am having aren't serious. I have asked them to change my medication as the one I am on clearly isn't working but they have refused and they have also refused to give me rescue medication to avoid me going into status.
Before long my epilepsy will take away everything, it already has changed my life from the day I was diagnosed, I had to change my career slightly and that hurt me so much. A lot of jobs refused to take me because of my condition aswell. My epilepsy can also affect my memory.
I am so fed up and I really wish I didn't have this condition. I get upset about how hard life is, and how horrible this condition is.
I also don't just live with epilepsy, I live with so many other conditions too that affect my daily life. Such as my vision impairments. I have a nystagmus that causes my eyes to move uncontrollably which leads to things being very blurry for me. I also have another eye condition, I am not sure on the name as they are so hard to remember spellings of, but it affects the nerves at the back of my eyes, I have to get frequent checks as I can go completely blind at anytime.
I also have hearing impairments, I am completely deaf in one ear and partially deaf in the other. I get ear infections very often due to a bone that is damaged in my ear and due to a hole going all the my through my ear drum. I am awaiting surgery to hopefully help and make me have less infections but they can't do the surgery until I no longer have an infection. I let them know that I no longer have an infection and by the time they book my surgery I get an infection again.
I also have a condition that affects my feet. I can develop extreme pain to the point where I cannot walk. I have been given some specialist equipment to use to help avoid the condition flaring up but it does still happen.
I also have Autism, A social anxiety disorder and PTSD. I am not going to get into those though. I am more down about my epilepsy than anything else.
Re: Anybody want to vent or chat about anything? w/c 08.12.25
Aw that's good
I'm doing good! The series of japanese novels I bought arrived today and I'm really excited to start reading them 
Re: Anybody want to vent or chat about anything? w/c 08.12.25
aw thankyou so much
im ok hru? 
eylah
1
Anybody want to vent or chat about anything? w/c 08.12.25
This is a space to chat or vent about whatever might be on your mind right now, nothing is too big or small!
Every Monday morning we will close the thread and start a new one so we have a fresh one each week. If you'd like to check out this week's triggering stuff edition thread, click here.
Every Monday morning we will close the thread and start a new one so we have a fresh one each week. If you'd like to check out this week's triggering stuff edition thread, click here.
Leyla
1
Re: I started sketching!
Thank you @Amy22, that's very kind. That sounds really cool, I find anatomy interesting as well though it sounds like your knowledge is way more in-depth which is very impressive. I definitely agree on drawing being therapeutic - I find when I get into doing something like drawing I kind of get tunnel vision and forget about everything else lol, although I'm autistic so maybe that's why hehe. If you ever draw or sketch again in the future I'd be super interested to see
Aw no worries your very welcome. I love anatomy because I find it fascinating and I also loved biology when I was in secondary school as well. Haha I have got a bit of knowledge only because I did study a foundation art course in college and it was a lot 😂, I had to do life drawing there too.
I used to be the same as well I think because I could just focus on drawing and forget about the things going on internally in my head and stuff. They do say for neurodivergent folk creating art is very therapeutic and it can be a form of stimming and self regulation.
Amy22
1
Re: Minecraft Makes
I'm thinking of some things that I could potentially build on Minecraft since downloading some new free add ons. I use a switch for minecraft which I know isn't as good as xbox or PlayStation consoles including PC. But I have been messing around with making tnt cannons.
Amy22
1