Home Health & Wellbeing
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Inpatient, PICU, not happy - TW

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  • Butterfly23Butterfly23 Miniposter England Posts: 810 Part of The Mix Family
    Let us know how it goes and I hope that you are okay  <3
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    The panel decided I've got to stay on my section for now but my family will be here in a minute and I havent seen them for 2 months so I'm mixed with nervousness and excitement.
    davcr0ck
  • AifeAife LondonCommunity Manager Posts: 2,651 Boards Champion
    I hope you have a nice time with your family @Lubna <3

    How are you feeling about the decision the panel made? 

    You're doing really well posting here about everything that's going on. We're all here to support you <3
    Maybe somethings don't get better, but we do. We get stronger. We learn to live with our situations as messy and ugly as they are. We fix what we can and we adapt to what we can't. Maybe some of us will never fully be okay, but at least we're here. We're still trying. We're doing the best we can. That's worth celebrating too ❤
    Butterfly23davcr0ckLubna
  • Butterfly23Butterfly23 Miniposter England Posts: 810 Part of The Mix Family
    I hope that it went okay with your family and we are here for you  <3

    Butterfly x
    Lubna
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    I did have a nice time with my family visiting me at the hospital. I'm going to ask in ward round today if I can go out for a meal with them on Wednesday so🤞

    I'm feeling dissapointed about the decision the panel made but I'm trying to think positive so I can get out of here ASAP. I think the consulant wanted to review some things in the reports that's why he wanted to keep me here longer my solicitor said but my section ends on the 17th so I'll deffinetly be discharged that day but hopefully sooner!
    davcr0ckAife
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    The consultant said I can go out for 3hours on Wednesday with my family although I think he wrote the wrong time down so I need to confirm this because my mum dosent finish work until 1:45pm and it's a 45minute drive so I hope the this dosent change things and the consultant also has given me unescorted ground leave twice a day for half an hour and I'm starting a new antipsychotic depot tomorrow SO I AM PREPARING to come home YIPPEEE. Hopefully won't have to stay until the 17th. Hopefully be coming home end of this week or beginning of next week🤞
    davcr0ckKathleen07
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    edited August 2019
    .
    Post edited by Lubna on
    davcr0ck
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    edited August 2019
    Someone is reading my phone.
    davcr0ck
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    Fcksake
    davcr0ckButterfly23
  • Butterfly23Butterfly23 Miniposter England Posts: 810 Part of The Mix Family
    Hey,

    Do you want to talk more about what's happening?  <3

    Butterfly x
    Lubna
  • CarolineVCarolineV Posts: 133 The Mix Convert
    How're things going @Lubna? Were you able to have your afternoon leave today?


  • LubnaLubna Deactivated Posts: 496 Listening Ear
    I had my afternoon out with my family yesterday instead of today because my mum changed plans. I have 3 hours a day escorted leave and 30mins twice a day unescorted leave. The consultant is saying I can't be discharged until someone is going to be at home but there is'nt staff there 24hours a day so when I am discharged the likelyhood is that no-one is going to be there. So idk what he means. I was hoping to be discharged tomorrow or Friday but the consultant wouldnt let me go out for the day today on my own so how is he going to discharge me tomorrow or Friday but who knows🤔
    davcr0ckdogmad20
  • RileyRiley Moderator Posts: 992 Part of The Mix Family
    Hey there @Lubna it's been a while since you posted this so I just wanted to check up on you and see how you're doing.

    You mentioned that you were hoping to be discharged either today or yesterday, has that managed to happen yet? Hopefully the doctors are able to make a decision and do what's best for you either way. :)

    Like a lot of other people in this thread have said we all care about you and are here to support you as much as we can, be sure to keep us all up to date with how you're feeling!
    I'm a community moderator. I represent The Mix on the discussion boards and I'm here to help guide discussions, make sure everything is within guidelines, and take care of the housekeeping. I can't send or receive private messages, but you can message @TheMix or email [email protected] with any questions or concerns and the team will get back to you.

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    davcr0ck
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    No I havent been discharged😥 they want to keep me in here until I have an assesment that could offer me more intensive support but there not coming to do the assesment until next week. It's going to be a long weekend😥 I wish it was Monday tomorrow. At least it's ward round on Monday so I'll be seeing the consultant then.
    chubbydumplingdavcr0ck
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    Ward round day today but I have woken up so early😴 hopefully the consultant will give me more insight as to when I can go home🤞
    davcr0ck
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    I have overnight leave at my mums tonight and then hopefully get discharged the end of this week yippee.
    davcr0ckButterfly23
  • Butterfly23Butterfly23 Miniposter England Posts: 810 Part of The Mix Family
    That's good news! keep us updated  <3
    davcr0ck
  • CarolineVCarolineV Posts: 133 The Mix Convert
    How did your overnight leave go @Lubna? It's great to hear that things were going well for you!
    davcr0ck
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    My overnight leave went ok.

    I'm having tomorrow night and Sunday night out aswell (I may or may not) don't know yet have to come back Monday night to be discharged Tuesday or I'll be discharged today or tomorrow.
    davcr0ckButterfly23
  • SiobhanSiobhan Posts: 14,465 Born on Earth, Raised by The Mix
    Good to hear <3
    have you had your assessment about the intense support for when you get discharged?

    hope discharge goes okay 
    “ i think that deep down you still think life is worth living. It’s no where near over for you. You’re in pain. The thing you lost, Is the same thing that can stop that pain”
    davcr0ckButterfly23
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    I have to come back Monday night to be discharged Tuesday😔 at least I'm being discharged though but I'll be informal from midnight tonight and don't have to spend the next 2 nights here. Just have to spend 1 more night here Monday night🥳
    davcr0ckButterfly23
  • Lucy307Lucy307 UKPosts: 1,127 Wise Owl
    How are you feeling @Lubna? Hope tonight goes ok and you can be discharged as planned tomorrow <3
    Treat yourself as you would treat a good friend
    Butterfly23
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    Feeling scared about going back home tomorrow after being in hospital for 3months. I'm informal now so I will be going home tomorrow.
    davcr0ckButterfly23
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    I have been discharged now and only been back home for half an hour it feels so strange😥
    Siobhandavcr0ckButterfly23
  • SiobhanSiobhan Posts: 14,465 Born on Earth, Raised by The Mix
    edited August 2019
    Lubna said:
    I have been discharged now and only been back home for half an hour it feels so strange😥
    Hey! I remember being discharged after spending some time sectioned. It can really feel overwhelming without the safety net. And eventho I hated it there I kinda missed it and wanted to go back. But just know - however you feel it's all valid and now you have more freedom!  can be really diffcult the first week or so. We are here <3 have you got any plans or anything to look forward to? Or just want to not do much for now?
    “ i think that deep down you still think life is worth living. It’s no where near over for you. You’re in pain. The thing you lost, Is the same thing that can stop that pain”
    davcr0ckButterfly23
  • CarolineVCarolineV Posts: 133 The Mix Convert
    I'm glad to hear you've been discharged @Lubna, although I understand that you feel a bit strange and scared. As @Shaunie said, it can be an overwhelming change after spending time in hospital.

    Do you have any support arranged now that you're back home?

    We're all here for you, you're doing great <3
    Butterfly23
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    Well I should be seeing the Home treatment team but they havent been in touch.

    I have an assesment with a more intensive support personality pathway tomorrow but I doubt they'de offer support straight away. Tomorrow is just an assesment and then after the assesment tomorrow I am seeing my Care Co-ordinator.

    So not much support I'll end up with a re-admission if they don't offer me more support soon.
    AifeButterfly23
  • AifeAife LondonCommunity Manager Posts: 2,651 Boards Champion
    You're doing really well Lubna. Best of luck with your assessment today, I really hope you're able to get the support your hoping for. Let us know how it goes today. <3


    Maybe somethings don't get better, but we do. We get stronger. We learn to live with our situations as messy and ugly as they are. We fix what we can and we adapt to what we can't. Maybe some of us will never fully be okay, but at least we're here. We're still trying. We're doing the best we can. That's worth celebrating too ❤
    Butterfly23
  • LubnaLubna Deactivated Posts: 496 Listening Ear
    edited August 2019
    It went shit today. They only did half the assesment so I have to go back next week or the week after to finish the assesment.

    The Home treatment team left me a voicemail to say they was going to be here between 5 and 5:30 so I came back from my friends to see them but they havent come yet.

    Just rang the Home treatment team and they said they've already left so they'll come tomorrow. Typical I didnt need to come back from my friends.
    Post edited by Lubna on
    Butterfly23Past User
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