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Worst results ever

RiverRiver Posts: 5,345 Part of The Furniture
in Health & Wellbeing
Got the worst results ever from the specialist :/ fuck my life :( why’s it just get worse
✨ ℐ 𝒶𝓂 𝒷𝓇𝒶𝓋ℯ. ℐ 𝒶𝓂 𝒷𝓇𝓊𝒾𝓈ℯ𝒹. ℐ 𝒶𝓂 𝓌𝒽ℴ 𝒾𝓂 𝓂ℯ𝒶𝓃𝓉 𝓉ℴ 𝒷ℯ ✨

✨ 𝒯ℋℐ𝒮 ℐ𝒮 ℳℰ ✨

Comments

  • GemmaGemma Posts: 1,093 Wise Owl
    Hey @Rose113, I'm really sorry to hear this - what are the results for? We're here to listen <3
    ♡♡♡
  • RiverRiver Posts: 5,345 Part of The Furniture
    Hi @Gemma there results for my tummy pain :/
    ✨ ℐ 𝒶𝓂 𝒷𝓇𝒶𝓋ℯ. ℐ 𝒶𝓂 𝒷𝓇𝓊𝒾𝓈ℯ𝒹. ℐ 𝒶𝓂 𝓌𝒽ℴ 𝒾𝓂 𝓂ℯ𝒶𝓃𝓉 𝓉ℴ 𝒷ℯ ✨

    ✨ 𝒯ℋℐ𝒮 ℐ𝒮 ℳℰ ✨
  • GemmaGemma Posts: 1,093 Wise Owl
    Oh yes @Rose113 - it sounds like you're feeling worried about the results you've been given, is that right? We're here if you'd like to share more about those results and your worries. <3
    ♡♡♡
  • RiverRiver Posts: 5,345 Part of The Furniture
    edited September 2024
    Apparently got something called (removed the name cos not sure if i want whole world to know) :/ according to google it’s bad :( going back new week to discuss a plan with the specialist :'(
    ✨ ℐ 𝒶𝓂 𝒷𝓇𝒶𝓋ℯ. ℐ 𝒶𝓂 𝒷𝓇𝓊𝒾𝓈ℯ𝒹. ℐ 𝒶𝓂 𝓌𝒽ℴ 𝒾𝓂 𝓂ℯ𝒶𝓃𝓉 𝓉ℴ 𝒷ℯ ✨

    ✨ 𝒯ℋℐ𝒮 ℐ𝒮 ℳℰ ✨
  • GemmaGemma Posts: 1,093 Wise Owl
    Thank you for sharing that with us @Rose113, it can be really worrying when we receive results that we don't quite understand. It's really positive that you're going back to discuss a plan with the specialist. Remember that googling conditions or symptoms can often lead us down a path of worry. I'm sure your specialist will have a plan in place to help you moving forward. It's good that they've found out what the root cause of your tummy pain is and now they can help treat it <3
    ♡♡♡
  • RiverRiver Posts: 5,345 Part of The Furniture
    @Gemma yeah :/ only took years to find out lol :,)
    ✨ ℐ 𝒶𝓂 𝒷𝓇𝒶𝓋ℯ. ℐ 𝒶𝓂 𝒷𝓇𝓊𝒾𝓈ℯ𝒹. ℐ 𝒶𝓂 𝓌𝒽ℴ 𝒾𝓂 𝓂ℯ𝒶𝓃𝓉 𝓉ℴ 𝒷ℯ ✨

    ✨ 𝒯ℋℐ𝒮 ℐ𝒮 ℳℰ ✨
  • eylaheylah Community Connector Posts: 10,559 An Original Mixlorian
    im sending you my love rose your so strong. i hope everything goes smoothly with specialist. <3
    ppl dont always need advice. sometimes all they rly need is a hand to hold. an ear to listen. and a heart to understand them. 🧸
  • Laura_tigger82Laura_tigger82 Discussion Boards Moderator Posts: 5,456 Part of The Furniture
    Hey @Rose113. That sounds really difficult :/ As someone with multiple chronic illnesses, this is something I have also experienced.

    How are you feeling about meeting with your specialist next week? We are here with you if you would like to talk to us more about this and about how your appointment goes :)
    FAQ | How to report a post | How to report spam
    I'm a community moderator. I'm here to help guide discussions and make sure Community Guidelines are followed. I can't send DMs, but you can message @TheMix or email community@themix.org.uk with questions or concerns.
  • RiverRiver Posts: 5,345 Part of The Furniture
    @Laura_tigger82 just rlly rlly scared :s
    ✨ ℐ 𝒶𝓂 𝒷𝓇𝒶𝓋ℯ. ℐ 𝒶𝓂 𝒷𝓇𝓊𝒾𝓈ℯ𝒹. ℐ 𝒶𝓂 𝓌𝒽ℴ 𝒾𝓂 𝓂ℯ𝒶𝓃𝓉 𝓉ℴ 𝒷ℯ ✨

    ✨ 𝒯ℋℐ𝒮 ℐ𝒮 ℳℰ ✨
  • Laura_tigger82Laura_tigger82 Discussion Boards Moderator Posts: 5,456 Part of The Furniture
    It is okay to feel scared @Rose113. Though, you don't have to feel scared alone. Is there a particular part which you are feeling scared about?

    For example, is it all the appointments, treatments or the idea it might never get better or something else? There are lots of reasons why health can feel scary but there are professionals there to guide us and our support network can support us through it. Self-care is also super important!
    FAQ | How to report a post | How to report spam
    I'm a community moderator. I'm here to help guide discussions and make sure Community Guidelines are followed. I can't send DMs, but you can message @TheMix or email community@themix.org.uk with questions or concerns.
  • RiverRiver Posts: 5,345 Part of The Furniture
    @Laura_tigger82 what if they say there’s no fix :( it’s just gonna make life not even worth carrying on with
    ✨ ℐ 𝒶𝓂 𝒷𝓇𝒶𝓋ℯ. ℐ 𝒶𝓂 𝒷𝓇𝓊𝒾𝓈ℯ𝒹. ℐ 𝒶𝓂 𝓌𝒽ℴ 𝒾𝓂 𝓂ℯ𝒶𝓃𝓉 𝓉ℴ 𝒷ℯ ✨

    ✨ 𝒯ℋℐ𝒮 ℐ𝒮 ℳℰ ✨
  • Laura_tigger82Laura_tigger82 Discussion Boards Moderator Posts: 5,456 Part of The Furniture
    It is true that there is not always a fix @Rose113. Sometimes, there are just tools we add to our toolbox to manage our symptoms, rather than 'fix'/'cure' our symptoms. The bigger our toolboxes are, the more manageable it becomes to still enjoy life and find meaning in it.

    How do you think you would manage if they were to say that? Though, hopefully, they will be able to work with you to create a plan for managing your health, especially now they (finally!) know what is causing it! That plan can also be tweaked based on how you find it over time too :)
    FAQ | How to report a post | How to report spam
    I'm a community moderator. I'm here to help guide discussions and make sure Community Guidelines are followed. I can't send DMs, but you can message @TheMix or email community@themix.org.uk with questions or concerns.
  • RiverRiver Posts: 5,345 Part of The Furniture
    @Laura_tigger82 i don’t know :/ still don’t think life would be worth living. Just want a cure for this pain cos it’s been unbearable for years and the past 2 months have been the worst with it :/
    ✨ ℐ 𝒶𝓂 𝒷𝓇𝒶𝓋ℯ. ℐ 𝒶𝓂 𝒷𝓇𝓊𝒾𝓈ℯ𝒹. ℐ 𝒶𝓂 𝓌𝒽ℴ 𝒾𝓂 𝓂ℯ𝒶𝓃𝓉 𝓉ℴ 𝒷ℯ ✨

    ✨ 𝒯ℋℐ𝒮 ℐ𝒮 ℳℰ ✨
  • GemmaGemma Posts: 1,093 Wise Owl
    Hey @Rose113, it's understandable that you would want a cure for this pain that you've been dealing with for years. There's no wonder you're feeling anxious about the possibility of there being no cure. It's important to remember that your condition doesn't define you, and there are so many parts of your life that are important and meaningful. <3

    It's really positive that you're in conversation with specialists who should be able to put a plan in place to help you manage the pain - sometimes it can be about trial and error and seeing what works for you. It's not an easy process, but you're doing all the right things in being open with your medical team. Do you think it could be helpful to start a diary on how you're feeling each day and how the pain is? This might help your medical team better understand your pain and how it's affecting your day to day life.
    ♡♡♡
  • RiverRiver Posts: 5,345 Part of The Furniture
    @Gemma yeah maybe but how do i do a diary like that :') i dont know where to start with it <3
    ✨ ℐ 𝒶𝓂 𝒷𝓇𝒶𝓋ℯ. ℐ 𝒶𝓂 𝒷𝓇𝓊𝒾𝓈ℯ𝒹. ℐ 𝒶𝓂 𝓌𝒽ℴ 𝒾𝓂 𝓂ℯ𝒶𝓃𝓉 𝓉ℴ 𝒷ℯ ✨

    ✨ 𝒯ℋℐ𝒮 ℐ𝒮 ℳℰ ✨
  • GemmaGemma Posts: 1,093 Wise Owl
    Hey @Rose113, I found this website here (I know it's American but it breaks it down quite well) on how to start a pain management diary: https://www.ptcoa.com/improve-your-pain-management-by-keeping-a-pain-journal

    It lists some ideas for what you could start recording each day and you could tailor this to whatever you're experiencing. :)
    ♡♡♡
  • RiverRiver Posts: 5,345 Part of The Furniture
    Ah thank you so much @Gemma ill take a look <3
    ✨ ℐ 𝒶𝓂 𝒷𝓇𝒶𝓋ℯ. ℐ 𝒶𝓂 𝒷𝓇𝓊𝒾𝓈ℯ𝒹. ℐ 𝒶𝓂 𝓌𝒽ℴ 𝒾𝓂 𝓂ℯ𝒶𝓃𝓉 𝓉ℴ 𝒷ℯ ✨

    ✨ 𝒯ℋℐ𝒮 ℐ𝒮 ℳℰ ✨
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