Home› General Chat
If you need urgent support, call 999 or go to your nearest A&E. For Crisis Support (open 24/7) text THEMIX to 85258.
Read the community guidelines before posting ✨
Please help us out!

We have our annual survey out, asking a few questions about you, your needs and preferences, and the impact of our services. It should take around 5-8 minutes and by completing it, you will be entered for a chance to win a £200 Love2Shop voucher (in line with our privacy policy)

Click here to fill out our survey.

Jeans For Genes Week

DancerDancer Community Connector Posts: 8,307 Legendary Poster
in General Chat
Hi everyone!

Happy Jeans For Genes week. You are probably wondering what on earth I am going on about.

Jeans For Genes Week is a week in September dedicated to raising awareness about genetic disorders. Some examples of genetic disorders are down syndrome, cystic fibrosis and sickle cell anemia. A genetic disorder is something that is passed on through genes (your parents or other generations in your family.) There is no cure for it but there are ways to control the disorders someone might have. 

I chose to request a colour change for the confetti cannon so the week can be celebrated in a unique way.

So wear your jeans and start raising awareness.

Stay awesome.  :)
"There's a part of me I can't get back. A little girl grew up too fast. All it took was once. I'll never be the same." ~ Demi Lovato
"The way that I have found the light in my life is through the expressive arts because I know that I will be accepted for the way I am." ~ Me
"I'm going to get strong again and see you soon. " ~ Anonymous 

Comments

  • Former MemberFormer Member Lyrical Poster Posts: 5,462 Part of The Furniture
    I love this thread, I have a rare genetic condition so it's great to see awareness, many people dont know much about genetic conditions. 

    Thanks for starting this thread :heart: 
  • SienaSiena Posts: 15,758 Skive's The Limit
    Thank you for sharing! <3
    ~Probably dead now
  • AoifeAoife Posts: 3,222 Boards Guru
    This is a lovely thread @Kasa2103 <3
    Maybe somethings don't get better, but we do. We get stronger. We learn to live with our situations as messy and ugly as they are. We fix what we can and we adapt to what we can't. Maybe some of us will never fully be okay, but at least we're here. We're still trying. We're doing the best we can. That's worth celebrating too ❤
  • DancerDancer Community Connector Posts: 8,307 Legendary Poster
    Thank you everyone.
    "There's a part of me I can't get back. A little girl grew up too fast. All it took was once. I'll never be the same." ~ Demi Lovato
    "The way that I have found the light in my life is through the expressive arts because I know that I will be accepted for the way I am." ~ Me
    "I'm going to get strong again and see you soon. " ~ Anonymous 
  • Former MemberFormer Member Miniposter Posts: 810 Part of The Mix Family
    Interesting information Kasa! 💓
  • Former MemberFormer Member Posts: 1,054 Wise Owl
    Lovely thread! I have hypermobility EDS which they believe to be genetic so it's really lovely to see awareness :heart:
  • DancerDancer Community Connector Posts: 8,307 Legendary Poster
    Butterfly23 said:
    Interesting information Kasa! 💓
    Thanks. It definitely is interesting to learn about.
    "There's a part of me I can't get back. A little girl grew up too fast. All it took was once. I'll never be the same." ~ Demi Lovato
    "The way that I have found the light in my life is through the expressive arts because I know that I will be accepted for the way I am." ~ Me
    "I'm going to get strong again and see you soon. " ~ Anonymous 
  • DancerDancer Community Connector Posts: 8,307 Legendary Poster
    coc0mac said:
    Lovely thread! I have hypermobility EDS which they believe to be genetic so it's really lovely to see awareness :heart:
    Thank you! Maybe it is genetic. Does anyone else in the family have it? If not it is just spontaneous 
    "There's a part of me I can't get back. A little girl grew up too fast. All it took was once. I'll never be the same." ~ Demi Lovato
    "The way that I have found the light in my life is through the expressive arts because I know that I will be accepted for the way I am." ~ Me
    "I'm going to get strong again and see you soon. " ~ Anonymous 
  • DancerDancer Community Connector Posts: 8,307 Legendary Poster
    edited September 2019
    I hope that everyone has enjoyed discovering lots about Jeans For Genes week. @The Mix same time next year? ;) Thank you @Aife for changing the colours for me and giving permission for this to go ahead. In Science on Friday we actually had the whole lesson dedicated to genetics. Discovered that brown eyes and brown hair is the dominant colour in the class. The teacher tested us on how much we knew about different genetic conditions. Sadly my school did not let us wear jeans but it was still great to raise awareness on here. Maybe I can persuade the school to do a day or two next year.

    Remember that raising awareness does not just have to be for 1 week. Genetic conditions last for a lifetime. 
    "There's a part of me I can't get back. A little girl grew up too fast. All it took was once. I'll never be the same." ~ Demi Lovato
    "The way that I have found the light in my life is through the expressive arts because I know that I will be accepted for the way I am." ~ Me
    "I'm going to get strong again and see you soon. " ~ Anonymous 
Sign In or Register to comment.