Uneducated people - seizures

Summerjune15

I am sick and tired of my family they keep making jokes about my seizures my brother is being really horrible and vile I had a absent seizure with a lolly in my mouth when I came around my dad said take it out of your mouth just in case because I could choke whilst having a seizure and then my brother said your a toddler your not even aloud lollies and I am aloud out on my own and he’s mocking my seizures I’m just sick off it and I said I’m going to bed because I’m exhausted and my parents were saying at this time and I said I am exhausted try being me for one day and then they said oh yeah it’s so hard being you it is actually I’m exhausted all the time my body is in pain from the seizures I have no answers why I am having these seizures I’m out of college because of health and safety reasons back and forth hospitals and doctors feeling sick after the seizures and they just say mean things and mock my seizures and my mums friends sister said to my mum those aren’t seizures my mum was showing her friend the recordings we have been told to record my seizures to show the seizure clinic which we didn’t need them because I had a seizure in front of them and the sister said they are not seizures we explained to her they called absent seizures even though I do have two types of seizures absent and I don’t know the proper term of word for the other seizures but fits so uncontrollably shaking my body unconscious etc and then I had a absent seizure and the sister saw it and when I came back around she was right in my face and said she knows what she’s doing and then when my mum and her friend checked if I was okay they left the room the sister stayed and said what’s wrong bare in mind I had multiple seizures that day so I was exhausted but after that I didn’t trust her enough to say that and then she said you’ve got to stop doing this your scaring mam and then before she left she said remember what I said and behave and I was really upset and still am and my behaviour and attitude is really bad I get so angry easily and irritated but I just came on here to rant because I knew it would help I’m so grateful for the mix🫶🏻

Orchid059

I'm really sorry you're experiencing all of this, especially from your family when you're already going through so much. It sounds like you're dealing with an incredibly challenging situation, both physically and emotionally. Seizures, especially with no clear answers or diagnosis, can be terrifying, and to have your experience invalidated or mocked by those closest to you is beyond frustrating. It’s absolutely understandable that you're feeling exhausted, both from the physical toll of the seizures and from the emotional strain of not being supported properly.

The comments from your mum's friend’s sister also sound extremely hurtful. She clearly doesn’t understand the impact of what she’s saying, and it's completely unfair to diminish what you're going through, especially after you've had a seizure. It's even worse when you feel like people are pushing you to “behave” and not take your condition seriously.

If it’s possible, you might want to have a calm conversation with your parents and brother about how this is making you feel. They may not fully understand how deeply their words are affecting you, but explaining it might help them realize how serious this is for you, both physically and emotionally.

It's important to remember that your health matters, and you deserve support and understanding, not mockery or invalidation. It's okay to feel angry, and it’s okay to set boundaries with people who aren’t treating you with the respect and care you deserve.

If your behavior feels different right now, it makes sense- you’re under a lot of pressure and facing ongoing medical struggles. It might help to seek some extra support for yourself, whether that’s through a therapist or a support group for people dealing with similar health challenges. You're not alone, and there are people out there who understand and can help you navigate these feelings.

Please be kind to yourself. You deserve understanding and compassion, especially during times when you’re feeling physically and emotionally drained.