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Petit Mal

Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
Hey there, it is probable that I have a form of epilepsy called Petit Mal - or Absences.

http://en.wikipedia.org/wiki/Petit_mal

This is basically a temporary blank out where you are unaware of anything happenning.

When I get it, it is a funny feeling coming along, and I am still aware of things happenning, I just dont understand it. Like peoples speech. All your words, dont makes sense. They sound familiar, yet, I don't know what it is you are talking about.

When it happens, I cannot read either. I can see the words they are meant to be, but I cannot process the letters.

Like a temporary dyslexia.

e.g. I once read INSPIRE as INSCURY.

I only know this as a couple of friends were with me and I was like "what is that word? I-i-in-s-c ... insc-u-u-ry. Inscury? Inscury?"

When it passed, I said, "That's inspire! What'd I say?"
( I dont remember what it is I said or thought the word was or thought you said when it passes, and I find it difficult to talk)

Another example of what happened that I have record of :

I was sending a text to someone when i had one : (the crazy bit will be in bold)

"yep. you know where massey uni is? catch a number 11 two sections and get off there. tell me when youre on the bus and I'll caught but right you"

I was MEANT to say "come and meet you"

Now when i was texting, I knew it was happenning, yet, the words made sense, and at the same time, they didnt, but I thought that what I was texting was right.

So hmm.

I get tested next friday, and I guess I just wanna know if anyone has experienced this or know anyone who has it. Cool as :)

xoxo

Comments

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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    The teacher thinks my son has it as he sometimes looks like he goes into a mini-trance, but we dont think thats what it is tbh. Will know more as he gets older probably. I just think that he goes deep in thought sometimes. I think i do it too occasionally.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I've got petit mal, where i used to blank out like you described, but it felt like a weird dreamland. And i used to forget what the hell i was doing after the episode.
    I got tested with brain scan and something else(cant remember what its called). My brain twas normal from the tests, so was diagnosed with petit mal. Havent had one for about 4+year now, took medication for a few years, but i think ive just grown out of them..
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    nelly_bar wrote:
    I've got petit mal, where i used to blank out like you described, but it felt like a weird dreamland. And i used to forget what the hell i was doing after the episode.
    I got tested with brain scan and something else(cant remember what its called). My brain twas normal from the tests, so was diagnosed with petit mal. Havent had one for about 4+year now, took medication for a few years, but i think ive just grown out of them..

    EEG? (Think that's what it's called - the one where you are hooked up to a machine which records your brain activity)
    The teacher thinks my son has it as he sometimes looks like he goes into a mini-trance, but we dont think thats what it is tbh. Will know more as he gets older probably. I just think that he goes deep in thought sometimes. I think i do it too occasionally.

    I get this alot as well, but when I had an EEG done for epilepsy 5 and a half years ago, nothing like that was picked up.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Sofie wrote:
    EEG? (Think that's what it's called - the one where you are hooked up to a machine which records your brain activity). I get this alot as well, but when I had an EEG done for epilepsy 5 and a half years ago, nothing like that was picked up.

    Yup, pretty sure the one you're thinking of is an EEG. I had the same, referred by my psychiatrist when I was about 17, cause I had the same kind of symptoms, but it came back normal, so the doctor said it was probably a combination of my (then pretty extreme) anxiety, and me being 'just a little absent minded'. He's not wrong, either :p
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    EEG, thats the one:thumb: tested my brain activity with flashing lights i remember
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Yep I'm getting an EEG scan on friday.

    I went through a time of having them up to 3 times a day, and just typical, that when I get appointments for specialists, they happen less often :rolleyes:

    So what happens in these scans?
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    You're wired up to a camera for a certain amount of time. (Mine was 24 hours) They will smetimes either do the test when you're asleep or awake. My dad had to have both of these done. When I had mine done, I was able to do just about anything as long as I stayed in my room.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Oooh sounds freaky :S
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    It's not that bad, tbh.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Mine was different. I had loads of little electrode things stuck to my head with some kind of goo, then they had me do stuff like look at light patterns and open and close my eyes, and recorded what my brain was up to. Not invasive and not painful, and I think it took about an hour.

    Although if you are having one like this, you might want to take along a hat or hairband, cause you'll have a slight case of goo hair :)
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I had the electrode stuck to my head like you, Kaffrin. My dad (at some point) did have exactly what yoi described.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Yea, they said that I have to wash my hair the night before and not have any product. I was like wtf?!
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I've had an EEG before and the worst thing about it is the gooey stuff they use to stick the electrodes to your head it gets stuck in your hair and takes abit of getting out
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    lea_uk wrote:
    I've had an EEG before and the worst thing about it is the gooey stuff they use to stick the electrodes to your head it gets stuck in your hair and takes abit of getting out

    Nail varnish remover works well, apparantely. It does wash out as well.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I think you mean Nail Varnish remover, could be wrong.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I think you mean Nail Varnish remover, could be wrong.

    yes, sorry my mistake.:blush: *edits*
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    So I got my test today, and they put crap in my hair and stuffed those electrodes things, and i had an abscence in the middle of it, so I guess thats good for analysis.

    Will find out in a few weeks I guess
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    So I got my test today, and they put crap in my hair and stuffed those electrodes things, and i had an abscence in the middle of it, so I guess thats good for analysis.

    Will find out in a few weeks I guess

    That crap (which is like sand) is 'glue'.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    It was gross. Like lots of product :S

    Then the nail polish remover burned my head a wee bit, as I have dermatitis on my scalp (its actually something called seriasus, but i don't know how to spell it :blush:)
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I know this is oooooooooold I just wanted to let you know that I have been diagnosed with it, and I am on medication. Going for an MRI in march next year.

    Fun times!!
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Good luck with everything. Ask all the questions you have and if you're not happy with the medication or it's side effects then go back and they may be able to try something different.

    It doesn't have to have a massive impact on your life.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I know this is oooooooooold I just wanted to let you know that I have been diagnosed with it, and I am on medication. Going for an MRI in march next year.

    Fun times!!
    Do you know what medication they're putting you on?

    My brother has had to go through about7 different types to find one that controls his (he used to blank out and 'jerk' which was great fun

    He's on topimax/topirate
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I thought it was normal to feel like that, kinda like daydreaming?
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Tweety wrote:
    I thought it was normal to feel like that, kinda like daydreaming?

    As did I. And it's something I do an awful lot.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Welsh Jemz wrote:
    Do you know what medication they're putting you on?

    My brother has had to go through about7 different types to find one that controls his (he used to blank out and 'jerk' which was great fun

    He's on topimax/topirate


    I'm on 3 tablets of Tegratol a day. I'm still having the seizures, though not as often... but theyve become more often again because of an emotional upheaval... may be put on different meds which will be great fun.

    Bonus though, because of it ( and other factors), I got $3,500 scholarship to uni!!

    yay!!!
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