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need a chat, I have Gastroparesis so I can’t eat/drink and my fam are abandoning me because of it

I was kicked in the knee in school when I was 16, I’m now 23 and have had over 30 operations, there’s been a lot of complications and I now have a feeding tube which I also have to put all my meds through which includes morphine and fentanyl on a daily basis. But my family are starting to abandon me because of it. I end up in a&e multiple times a week projectile vomiting fresh blood and even choking on the blood. I have some of the top surgeons in the UK trying to help me but it’s just so complicated. I’m starting to lose hope and I just don’t know how to hold on and get through this on my own. I started googling and found some of these chat boards and reading some of the entries it seems like some of you may just need someone else to talk to, someone out of your family who will understand. Please feel free to speak to me, I could really do with the company, please??
Jazi x
Spook98Butterfly23tkdogSalix_alba_2019LibbyMaddie05

Comments

  • dancertoridancertori CornwallPosts: 84 Miniposter
    hi Jazi,
    i have gastroparisis and other heath issues too. im here for you.
    Tori x
    JaziMarieMaddie05
  • Spook98Spook98 UKPosts: 237 The Mix convert
    I've been on this board an awful lot lately. I'll endeavor to reply whenever I can, which is often :) sorry to hear about your health issues too. Sounds like a shitty situation to be in that you just don't deserve 
    JaziMarieMaddie05
  • Butterfly23Butterfly23 Miniposter England Posts: 817 Incredible Poster
    Hey!

    Welcome to the community and thank you for sharing with us 💗Personally, I haven’t had experience with Gastroparisis but I hope that you will be able to find some advice and support here for it! 😊 and feel free to keep talking to us.

    Hope you are okay,

    Butterfly x
    JaziMarieMaddie05
  • ShaunieShaunie England 🏠Posts: 7,344 The Mix Elder
    Heyy welcome!

    You seem like a strong person. That sounds like so much to go through everyday & can hear you're starting to feel isolated?  We are here for you and you don't have to go through this alone. We do understand that sometimes speaking to someone that's not in your family can really help. We're all listening 
    <3 
    “If we could look into each other’s hearts and understand the unique challenges each of us faces, I think we would treat each other much more gently, with more love, patience, tolerance, and care” Marvin J. Ashton
    Maddie05
  • alice123alice123 Posts: 88 Miniposter
    edited July 2019
    Hey @JaziMarie

    I just wanted to say well done for reaching out. It sounds like you are going through a lot right now and I wanted to let you know that we are here to listen to you whenever you need. It can often be really helpful to have people who are external to a difficult situation who can listen to you without forming opinions. 

    Did you want to speak more about the Gastroparesis and how facing it is making you feel?

    Sending hugs <3
    Maddie05
  • SebJSebJ Posts: 4 Newbie
    Hey that sounds really tough, and really unfair your family are treating you badly. Not sure if it applies but if you're needing help have you looked into getting social care or nhs continuing care support?
    Maddie05
  • Maddie05Maddie05 UK/NottinghamPosts: 56 Miniposter
    WELCOME! 

    YOU ARE SO BRAVE! SO STRONG AND MIGHTY! KEEP GOING! And your family are a piece of sh*t (sorry about my language, I'm angry!) if they are leaving you because of that! If I had all those complications like you, my mum would be there 24/7! Your family don't deserve someone so special and rare! ❤

    Keep fighting! YOU DEFINITELY DESERVE TO LIVE! YOU WERE BORN A WARRIOR! ❤

    TAKE CARE OF YOURSELF! WE ARE HERE FOR YOU IF YOU NEED A CHAT! ❤❤

    - Maddie, 13
    Butterfly23
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