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Sharing here a list of some self-care apps if helpful - https://papyrus.orchahealth.com/en-GB/self-care
hey
hello!
How are you both?
im ok thanks for asking. you?
Im ok too thanks, its just way too hot
Let's just say things are not necessarily going to plan for me right now and it is incredibly fustrating.
I had blood tests recently and found out that there is something low in it and I have to take medication for 4 months then get rechecked I mean it's kind of good as now we know why I have been having mobility problems but I just keep getting new things going wrong and it gets too much even though I am very much used to it.
I was in hospital Monday to Friday this week for a prolonged eeg so they can see if my brainwaves are also going crazy during the night and to find out if my medication is making a difference to my epilepsy during the day. This was alright apart from the sensory nightmare it caused me. We get the results of this in August.
Tw- mention of weight
I have a doctors appointment tomorrow due to some concerns as recently my weight has been dropping a lot and we can't figure out why and it was picked up on last week when I last saw my doctor about my mobility which is why I had the blood test.
So there is just a whole lot going on right now and it is very overwhelming.
I am trying my best to keep moving on despite all these problems right now. Trying to get into my daily routine, I have not been able to go to work for weeks which has been fustrating for me.
How were the doctors yesterday? I wonder if there are any of them that you feel particularly supported or heard by? When are you next due to see them again?
That makes sense, and I can imagine it's so hard when you're trying to establish some control over your day and some structure, but things keep getting disrupted. What kind of daily routine do you think you'd ideally like to have at this time? Are there any activities you think it could be helpful to work into your routine a bit more?
Yeah it really does feel like I can't catch a break and it does get tiring, I have sleeping problems which are also under investigation so that really doesn't help anything.
I am at the doctors on Wednesday for them to do some basic checks and see if they can get me referred to someone to try find out about what is causing my weight to drastically drop.
The doctors have been good, they are trying really hard to find out the causes of everything.
To be honest I really just wish things were kind of back to normal as I really just want to get back at doing all the things I like doing. Like get back to doing my one day at work, go and meet up with my friend, be able to go for a walk and actually move around without it being such a difficult and tiring task.
I just want to have my life back if you get what I mean, I am only recently in adulthood and it's all gone bad, I am still trying to get qualifications to do something, when I was working I only do one day a week as that's all my health allowed me to do at the time but now I am unable to do any days at all.
I really do try and walk around the house and do some little jobs but I am mostly just layed out in bed exhausted as every little task takes away all the energy I have.