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Usher's (syndrome/illness)
Former Member
Posts: 1,876,323 The Mix Honorary Guru
A friend of mine told me last night, that her mother has Ushers.
What we know is that she is becoming blind, and losing her hearing too.
Apparently this syndrome/illness is hereditary (even more worrying 4 my m8)
and the sufferer becomes totally blind and deaf(horrific).
Does anyone out there know more about it, and are there any support groups in the Lancashire area, for sufferers and/or carers/relatives?
Thanx
We are all in the gutter.
The difference between us is that some of us face skyward..
What we know is that she is becoming blind, and losing her hearing too.
Apparently this syndrome/illness is hereditary (even more worrying 4 my m8)
and the sufferer becomes totally blind and deaf(horrific).
Does anyone out there know more about it, and are there any support groups in the Lancashire area, for sufferers and/or carers/relatives?
Thanx
We are all in the gutter.
The difference between us is that some of us face skyward..
0
Comments
god that sounds awful babe, I haven't found any local support groups searching google, but I did find this list of links which she will probably find useful http://www.ncdeafblind.org/usher.htm
http://web.ukonline.co.uk/hearing.concern/fush.htm is a link to the usher's page of the website for hearing concern in the UK.
http://www.deafblind.com/deafblnd.html is a resource list for deaf/blind on the net
as is http://www.deafblind.co.uk/
http://www.deafblinduk.org.uk/ is self explanatory
another deaf/blind site in the UK http://www.sense.org.uk/homepage.html
Listserve have a newsgroup, she can join (if she has a computer) here http://www.tr.wou.edu/CGI-BIN/WA.EXE?SUBED1=deafblnd&A=1
to get all of these, I typed usher+deaf+blind+UK in te search window of www.google.com
Her local health centre should be able to pass her on to any local deaf/blind organisations who should be able to find support groups for them.
Pass on my sympathy & I hope they get all the support they need
j9