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Post Viral Debility

Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
I just got back from the doctors and he said that my blood test for Glandualr Fever has come back negative- but that I had a raised white lymnoid (i think thats it) count which indicates I have been suffering from a non-specific virus.

He says that he now thinks I have post-viral debility; which is a little like M.E

Does anyone have any experience with this? I'm finding some days are better than others, some morning terrible whilst afternoons are great and vice-versa. I go back to school on the 5th Janurary and have AS unit exams a week after that... any tips and/or adivce or experiences?

Comments

  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    Doesnt it just mean you are still suffering a bit after a virus like tiredness ect?!:confused:
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    Apparently doing some excercise, like going for a walk can help you feel a little more awake. Make sure your exam board KNOW, get a doctors certificate and sort it out through your school/college ok?
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    my pal has been suffering from post viral fatigue syndrome and has been haven't very bad pains in her legs and her doc has now sent her for full blood tests-will be interestin to see if her results come back the same.
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    Thank you all for your replies;

    The doctor described the condition as similar to M.E in that the virus symptoms can periodically occur, but the most prominent inconvience is the extrme tiredness; which at the moment although it is a pain (I'm getting around 10 hours sleep a night, but by lunchtime I'm tired again!- and it really is tiredness, not lethargy) I am dealing with it as we are off school.

    I've been trying to stay active; been shopping, obviously down to the doctors and just having little trips out. I have gym membership but I've not felt up to going for a while...may attempt that later this week.

    I hadn't thought of contacting the exam board, the doctor said that this might last days/weeks/months etc...but that there is no more exact prognosis. Is it a condition I would get a doctors certificate for then? What could the exam board actually do? At the minute I'm presuming I will be well enough to actually sit the exams; we are able to organise our own 'study leave' so I will have the ability to sign myself off home without being too out of place during exam time.

    How should I approach school to let them know? Of course, things might be greatly improved by next week, but as 'Tweety' said is this just something like 'feeling tired' after an illness?
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    Originally posted by notebookkt
    but as 'Tweety' said is this just something like 'feeling tired' after an illness?

    Well i was searching on the net & thats the idea i got. could be wrong though.
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    I had M.E for about 18 months, and still suffer from it occasionally. While i don't know the ins and outs of what you've got, it sounds like you should approach it in the same way as M.E - do tell your school, get doctor's letters for everyone and DO let the exam boards know, you'll probably be entitled to extra time. You need to keep everyone up to speed on things like this.

    Hope you feel better soon, feel free to PM me if you want any more info.
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    Hiya
    You'll find some very useful information on Skill's website - they are an organisation that help students with disabilities and can advise you on approaching your university and get help from them - there are details of a helplines on their website.
    We have this factsheet on chronic fatigue syndrome, which could help you a bit, but it's more geared towards full-blown M.E., which is doesn't sound like you have been diagnosed with.
    M.E. and post viral disorders can be quite a wooly area and hard to get the right advice on, but the best thing you can do is be aware of your limitations and make sure that others around you are too (teachers, friends, relatives) so that they can support you at the times you need it most. Keep in regular contact with your GP and get as much info out of them as you can about how to best deal with the condition.
    Take care
    :)
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    I had a really bad day today, felt very down and had an odd feeling that my tongue/throat was swollen and my cheeks felt puffy? Was very strange.... am really hoping to get an appointment at the doctors tomorrow- mum said she doesn't think he'll do anything but I spoke to connexions and they said I should be able to get a written note to the exam board/school about it....

    I'm really, really worried about wednesday (back to school day) I can't see me making it- but then if I do and need to come home I don't want to be a burden. I just don't know,

    this morning If felt bad when I woke at about 7:30 and it took me a good 2/3 hours to get up/showered/breakfasted byt which point all I wanted to do was sit in front of the tv!

    Really worrying now...thought I'd be totally back to normal by Christmas...then by new year...now when?
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    Thought I would keep you posted with whats happening. I went back to the doctors this morning and after a thorough appt I had a swab of my tongue taken and I'm booked in for blood tests tomorrow and a further appointment on Friday.

    The appointment tomorrow means I won't be going into school in the morning...but I'm undecided about the rest of the day and the rest of the week.

    The Dr said to wait and see for blood test results before he writes to school/exam board...first exam is supposedly on monday..im dead against doing it tho. m underprepared (well- unprepared) and sooo tired!

    Its all come around so fast and I am still
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    You are not the only one

    I have something very similar to you. I caught what was suspected as being Glandular Fever just before Easter 2004. I have not been the same since.

    I did not have GF, but had every blood test going as well as other tests. One of the immunoglobins levels was slightly low. I felt as if I were about to go down with the flu, only to for it not to happen. This was alll the time - every day for months. The tonsils seemed to be swollen or sore, only to be fine after a nights sleep. I also felt tired all the time, I had fevers, headaches, a stiff neck - or a combination to a greater or lesser extent all the time.

    Like you I have good days and then bad days. I cannot link the bad to anything like previous activity levels or anything. It just comes and goes.

    Eventually I could not go on any more at work. I took three weeks holiday, and have been working much reduced hours since September.

    The good news is that I think it is improving. I have good days and bad days. The bad periods now seem to pass over a number oif hours rather than say a day. I ensure I get lots of sleep and still take things easily. I tend to feel worse in the mornings, and perk up in the afternoons still. This is not normal for me as I am very much an eatly bird. Its funny but people at work started to say I looked better all of a sudden - but this is 7-8 months after the start.

    Depending on how things develop, I would certainly ensure that the examining authorities know of your condition. I keep a daily diary of how I feel, recording symptoms (eg headache, still neck etc), but also an overall mark out of ten of how I feel. I can send you this speadsheet if you wish. I got it from the Occupational Health department at work.

    Good luck I hope things improve, and you get over it.
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    i have been suffering with the same problem now since May, i firstly got ill with what the doctors thought at the time was tonsilitus. i was given antibiotics and it did finally clear up although it was from here that i went downhill. about 4 wks later i was signed off work with extremely low blood pressure, dizziness and exhaustion, i suffered a strange attack on my heart at this time also and was admitted to intensive care with an irregular heart rate of 180 beats per min! After many doctors visits and specialists i was informed i suffered from a heart condition which meant that i had a problem with the electricity in my heart and so i was put on beta blockers to control it. I went back to work and within 2 weeks i was exhausted, dizzy, experiancing muscle and chest pains, pains down my arm and in my neck and head. My blood pressure again dropped to 80 over 50. Yet after more blood tests and exams no one could tell me why (i live in cyprus and the doctors here dont seem to have heard of ME) At this point i was extremely down and terrified as no one new wot was wrong so i went back to the uk and within 3 days i wa diagnosed with post viral debility. they also thought i had had glandular fever but the test was negative. the doc signed me off for 4 weeks and i returned to cyprus happy i had a diagnosis. I felt that i would be able to return to normal life..... unfortunately within 2 weeks of firstly starting back work part time i got ill again and had no energy to get out of bed. Its not been nearly 5 months and im still suffering from this. I have had to resign from my job as i cant cope with working full time and i also have to move back to the uk now as i cant afford to live here and not work... I hope that u are now starting to feel better as i no how depressing it can be and feeling like you have lost your old life. I also suffer from feeling that my throat and tongue are swollen although i never did mention this to the docter as i thought he would think i was a hypochondriac!! Although i think i willnow mention this to him. I hope that u manage to get through your exams but i would def mention this to school to see in what ways they can help you out with this.
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    CHECK THE DATE, his exams would have been over ages ago. :banghead:
  • Former MemberFormer Member Posts: 1,876,324 The Mix Honorary Guru
    He is probably at uni now. :D
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