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Post Viral Debility
Former Member
Posts: 1,876,323 The Mix Honorary Guru
I just got back from the doctors and he said that my blood test for Glandualr Fever has come back negative- but that I had a raised white lymnoid (i think thats it) count which indicates I have been suffering from a non-specific virus.
He says that he now thinks I have post-viral debility; which is a little like M.E
Does anyone have any experience with this? I'm finding some days are better than others, some morning terrible whilst afternoons are great and vice-versa. I go back to school on the 5th Janurary and have AS unit exams a week after that... any tips and/or adivce or experiences?
He says that he now thinks I have post-viral debility; which is a little like M.E
Does anyone have any experience with this? I'm finding some days are better than others, some morning terrible whilst afternoons are great and vice-versa. I go back to school on the 5th Janurary and have AS unit exams a week after that... any tips and/or adivce or experiences?
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The doctor described the condition as similar to M.E in that the virus symptoms can periodically occur, but the most prominent inconvience is the extrme tiredness; which at the moment although it is a pain (I'm getting around 10 hours sleep a night, but by lunchtime I'm tired again!- and it really is tiredness, not lethargy) I am dealing with it as we are off school.
I've been trying to stay active; been shopping, obviously down to the doctors and just having little trips out. I have gym membership but I've not felt up to going for a while...may attempt that later this week.
I hadn't thought of contacting the exam board, the doctor said that this might last days/weeks/months etc...but that there is no more exact prognosis. Is it a condition I would get a doctors certificate for then? What could the exam board actually do? At the minute I'm presuming I will be well enough to actually sit the exams; we are able to organise our own 'study leave' so I will have the ability to sign myself off home without being too out of place during exam time.
How should I approach school to let them know? Of course, things might be greatly improved by next week, but as 'Tweety' said is this just something like 'feeling tired' after an illness?
Well i was searching on the net & thats the idea i got. could be wrong though.
Hope you feel better soon, feel free to PM me if you want any more info.
You'll find some very useful information on Skill's website - they are an organisation that help students with disabilities and can advise you on approaching your university and get help from them - there are details of a helplines on their website.
We have this factsheet on chronic fatigue syndrome, which could help you a bit, but it's more geared towards full-blown M.E., which is doesn't sound like you have been diagnosed with.
M.E. and post viral disorders can be quite a wooly area and hard to get the right advice on, but the best thing you can do is be aware of your limitations and make sure that others around you are too (teachers, friends, relatives) so that they can support you at the times you need it most. Keep in regular contact with your GP and get as much info out of them as you can about how to best deal with the condition.
Take care
I'm really, really worried about wednesday (back to school day) I can't see me making it- but then if I do and need to come home I don't want to be a burden. I just don't know,
this morning If felt bad when I woke at about 7:30 and it took me a good 2/3 hours to get up/showered/breakfasted byt which point all I wanted to do was sit in front of the tv!
Really worrying now...thought I'd be totally back to normal by Christmas...then by new year...now when?
The appointment tomorrow means I won't be going into school in the morning...but I'm undecided about the rest of the day and the rest of the week.
The Dr said to wait and see for blood test results before he writes to school/exam board...first exam is supposedly on monday..im dead against doing it tho. m underprepared (well- unprepared) and sooo tired!
Its all come around so fast and I am still
I have something very similar to you. I caught what was suspected as being Glandular Fever just before Easter 2004. I have not been the same since.
I did not have GF, but had every blood test going as well as other tests. One of the immunoglobins levels was slightly low. I felt as if I were about to go down with the flu, only to for it not to happen. This was alll the time - every day for months. The tonsils seemed to be swollen or sore, only to be fine after a nights sleep. I also felt tired all the time, I had fevers, headaches, a stiff neck - or a combination to a greater or lesser extent all the time.
Like you I have good days and then bad days. I cannot link the bad to anything like previous activity levels or anything. It just comes and goes.
Eventually I could not go on any more at work. I took three weeks holiday, and have been working much reduced hours since September.
The good news is that I think it is improving. I have good days and bad days. The bad periods now seem to pass over a number oif hours rather than say a day. I ensure I get lots of sleep and still take things easily. I tend to feel worse in the mornings, and perk up in the afternoons still. This is not normal for me as I am very much an eatly bird. Its funny but people at work started to say I looked better all of a sudden - but this is 7-8 months after the start.
Depending on how things develop, I would certainly ensure that the examining authorities know of your condition. I keep a daily diary of how I feel, recording symptoms (eg headache, still neck etc), but also an overall mark out of ten of how I feel. I can send you this speadsheet if you wish. I got it from the Occupational Health department at work.
Good luck I hope things improve, and you get over it.