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Any Ideas for raising awareness on FND

Summerjune15Summerjune15 Posts: 167 Helping Hand
in Health & Wellbeing
As some of you already know that I’ve got a condition called FND also known as functional neurological disorder i want to raise awareness my original idea was to make bracelets with the words FND WARRIOR but my bracelets kept snapping and falling apart and even if I was able to fix them which I wasn’t able to fix most of them I was to scared to sell them as if it broke for one of the customers I also felt it was to girly and I didn’t want to leave the boys / men out as they can suffer with FND too I’m good at crafts and writing so maybe I could do something along those lines but any ideas would be really helpful and appreciated thank you🫶🏼

Comments

  • shannon_164shannon_164 Community Connector Posts: 2,487 Boards Champion
    hey @Summerjune15 🙂

    i really admire how you’re turning something so personal into a way to raise awareness and support others! i think your idea with the bracelets was beautiful, and it makes total sense that you’d want something that feels inclusive and durable. it’s ok that they didn’t work out, what matters is your heart behind it!

    since you’re good at crafts and writing, maybe you could create wee awareness kits with handwritten notes or mini cards explaining what fnd is, paired with small crafted items like keychains? lots of people do things like self care kits etc. another way could be using social media platforms to raise awareness by sharing your journey with fnd l, obviously if you’re comfortable doing so that is! you could inspire so many people who might be feeling alone in it.

    whatever you choose to do, i think it’s already a big step just by trying <3
  • RiverRiver Community Connector Posts: 4,520 The Mix Elder
    edited May 31
    Hey @Summerjune15 your ideas of raising awareness are lovely, I’m not to sure about other ideas but for your bracelets snapping if you not the ends and then put clear nail polish over the top of the knot it keeps them from breaking (had a bracelet business ages ago) :)

    Maybe you could do fnd care packages you know like you can get mental health ones? Maybe ones specifically for fnd and like a guide to it all 💕
    Sometimes when the people most like you don't love you, it is a hurt that can cause the greatest pain, and this pain can lead you to hate everything.
  • Summerjune15Summerjune15 Posts: 167 Helping Hand
    Hey @shannon_164 and thank you it took me awhile to realise and think to myself no FND will NOT BREAK ME I am currently in a middle of writing a story and I was thinking about personalised medical lanyards I don’t know how that’s going to work out and I was thinking about FND care toolkit but that’s the thing with me I have loads of ideas running through my head I want to do them all haha but I’m going to stick with the book and I’m hoping to publish it and yes I will be using my social media platforms to raise awareness (when I’m 18 I’m not aloud social media platforms until 18) but I LOVE your idea about key-rings and handwritten notes thank you so much🩷 (I was thinking about a blog living with FND but I wouldn’t like sharing myself to the world at such vulnerable times so book it is! Thank you again for you lovely idea🩷
  • Summerjune15Summerjune15 Posts: 167 Helping Hand
    Hey @Rose113 thank you for telling me that trick and I love the idea of a FND care package and I wanted to do one just didn’t know what items to put in haha but I’m going to to write a book and I was thinking about personalised medical lanyards but I have so many ideas running through my head haha I’ll stick to my book for now and I’ll give that nail polish trick a go as I can make bracelets in genral as I loved doing them just had no patience when they kept snapping haha thank you for your amazing idea🩷
  • Summerjune15Summerjune15 Posts: 167 Helping Hand
    @Rose113 also stitch is AMAZING I’m obsessed😂💙
  • RiverRiver Community Connector Posts: 4,520 The Mix Elder
    Aha thank you @Summerjune15 i made it haha :)
    Sometimes when the people most like you don't love you, it is a hurt that can cause the greatest pain, and this pain can lead you to hate everything.
  • shannon_164shannon_164 Community Connector Posts: 2,487 Boards Champion
    hey @Summerjune15 🙂

    i know this post is from a wee while ago now but it just randomly popped into my head there when i was scrolling through tiktok and seen someone talking about a similar thing n i then thought about how kings trust, previously known as princes trust, have lots of info and advice on their website, as well as an actual program too for those looking to start a business - i’ll add the link to the webpage below <3
    https://www.kingstrust.org.uk/how-we-can-help/support-starting-business
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