Doctors do they even care??

Invisible_me

Hi. So I was supposed to go docs today kind of review and follow up from an email the doc received about me. She contacted me straight after that email spoke to me and this FTF appt today was arranged to follow up.
But I thought ill sneak without mum knowing. Mum ended up coming home for linch so couldn't and I didn't tell her couldn't think of any other reason to leave house felt bad lieingv to her or telling her ladt minute. Phoned up on hold over an hour gave up. Didn't turn up. I thought someone will call me, message me asking if I'm okay (thry did once twice). Waited, waited nothing. Not from doc nor from care coordinator. I phoned up 2hrs later asking up speak to care coordinattor. Did she call bavk...no!!
Just got a text saying a review is due for your weight please bool your in, where are the appts for merger practice which I don't go to! I don't want my weight done!!,
I so miss the old receptionust. She'll talk to me for ages, calm me down. Check in b on me maje sure I was okay phone me back straight away. If I phoned up to cancel apot shell be likr no I'm not cancelling it your coming and encourag me to come. I dont get any of that anymore.... I miss her 🥺
Tbh the doc made me cry in the last appointment I dont wamt to see her but too scared to see anyone else!

DonnerKebab

I know the feeling. I think at this stage, most GP practices are just so overwhelmed with waiting lists now, that they just stop caring and reaching out. I was supposed to get a referral for an autism assessment and 6 years later am still waiting for it (they've 100% forgot). I had a blood test done, and they never even told me the results, had to go onto my medical records to find them myself and have google break down what each thing meant. They truly stopped caring i think. The receptionist you mentioned is one of a kind i think. As hard as this is, if you leave things up to them now, they'll brush it aside and not bother. At this stage, you're most likely going to have to push things with you're doctor, which is very hard, especially if it's one of those cold scary ones. Is there a social worker or counsellor who can support you with pushing these things and to help advocate for you, cause i think that would be ideal for you're situation with the doctors?

Invisible_me

Hi..thanks for reply! So true...its becoming less personaliaed and ira not how it should be. I mean I'm probably still a but luckier than some but its not tailore to me. Like i have an allocated care coordinator at docs whose supposed to be my point of contact, check in on me review things etc but shell pit the phone down in me when in distress, say im not qualified enough or literally won't hear run her for ages. The receptionust was amazing she was less qualified then care coordinator literally she was in n her 20s and so lovely and she used to support and stay on phone to me unlike this person..
Care coordinator emailed me wed saying I note you missed appt not sure if you forgot here is a link to autism services sent me a generic link to directory. I said no u didn't forget to scared to come ca you rebook me and she said no ill book you to see me and only book me in with dr if there's a need! Like what happens if I want to talk to dr I mean I'm scared to talk to her after last appt but still.

Sian321

Hey @Invisible_me , how are you doing this afternoon? Thank you so much for making this boards post. I really wanted to check in.

You mentioned that you recieved a request to attend a FTF GP appointment but were unable to leave the house due to not wanting your Mum to know where you were going / feeling unable to leave. And then after this, you didn't recieve any follow-up calls from the GP practise, and this really left you missing the old receptionist who worked there who would check in on you and take the time to listen and to encourage you too. That sounds really dssapointing, sad, and frustrating, esspecially when you had already had to wait a while for that appointment and attending the meetings feels really daunting.

Can I ask, what prevented you from feeling able to tell your Mum where you were going, and what do you think might have happened if she knew you were seeing the GP? (No pressure to share - only if you feel comfortable) Also, I'm wondering how you've been feeling emotionally since this happened?

You're doing so well to talk about this, and we're here with you to explore this some more. You don't have to face this on your own.

Invisible_me

Sian321 wrote: »

Hey @Invisible_me , how are you doing this afternoon? Thank you so much for making this boards post. I really wanted to check in.

You mentioned that you recieved a request to attend a FTF GP appointment but were unable to leave the house due to not wanting your Mum to know where you were going / feeling unable to leave. And then after this, you didn't recieve any follow-up calls from the GP practise, and this really left you missing the old receptionist who worked there who would check in on you and take the time to listen and to encourage you too. That sounds really dssapointing, sad, and frustrating, esspecially when you had already had to wait a while for that appointment and attending the meetings feels really daunting.

Can I ask, what prevented you from feeling able to tell your Mum where you were going, and what do you think might have happened if she knew you were seeing the GP? (No pressure to share - only if you feel comfortable) Also, I'm wondering how you've been feeling emotionally since this happened?

You're doing so well to talk about this, and we're here with you to explore this some more. You don't have to face this on your own.

Hi @Sian321 ,
Thanks for reply.

○ I booked the appointment and then felt unable to attend.
○ I just didn't want her to know, didbt want yo answer the "why you going" "what did you say" "what did she say". . Also wanted some privacy to myself. But I also felt scared to go because of my last appt with her and I didn't want to be weighed which is overdue.
○ I really do miss the old receptionust.
○ the care coordinator emailed me wed with autism resources but this wasn't accessible it was loyeeally a link with 100 different services available in UK then I have to filter it down etc
I said no i didn't forget to scared to come ca you rebook me and she said no ill book you to see me and only book me in with dr if there's a need! Like what happens if I want to talk to dr I mean I'm scared to talk to her after last appt but still.