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Living with Myalgic encephalomyelitis or chronic fatigue syndrome
MorgsSmiles24
Posts: 43 Boards Initiate
Even though I've had the diagnosis for just under a month, I have been living with symptoms for the past four years. I don't really go out much other than when I volunteer at the hospital or go grocery shopping. Simple tasks such as walking up the stairs make me feel exhausted. The GP said as there isn't any medication I can take I just have to manage my lifestyle which is hard at times especially when it comes to physical activity. I do try and motivate myself to do more exercise, but my body can't tell the difference between doing 5 minutes of simple exercise and running a marathon. I also experience dizziness, joint pain and brain fog and just a feeling of always being tired 24/7 no matter how much sleep I get. Despite this, I am looking for a job, preferably one that isn't physically tasking for me or one where I can sit most of the time. I try to make the most of each day and work with how my body feels. I enjoy being a part of the mix community as it helps me feel less alone due to my lack of social life.
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Comments
Thank you for opening up, chronic illnesses are things that aren't often spoken enough about, especially when they aren't visible so can be misunderstood in a lot of cases - they can impact people differently and it sounds like yours really can impact you every day and make a lot of things trickier and more exhausting than you want them to be. I hear how frustrating or upsetting that could be for you feeling so exhausted all of the time, despite your attempts to make life easier for yourself. You're doing so well to be powering on and trying to adapt your life around this. You said you had symptoms long before you were given the official diagnosis, how did it feel to finally put an official label to what you had been going through for so long?
It sounds super positive to be so self-aware of what your body is telling you and that this can change day to day, and I speak for us all when we say we're happy you've had positive experiences here at The Mix and we are glad to continue to offer you the support and connection you might want at the moment!