FND

I’ve been diagnosed with FND March 3rd the last month and 2 weeks have been a rollercoaster it all started 6th of February I was in college my friend asked if I was okay and she was saying I keep zoning out and wasn’t responding to anyone i said just day dreaming probably so we brushed it off an hour later I was having a seizure and had multiple seizures and never fully gained consciousness so an ambulance was called before the ambulance arrived a first responder came few minutes later the ambulance arrived and they helped me into the wheelchair as i couldn’t feel my right leg I arrived at the hospital and had a brain scan called a CT scan that came back all clear I stayed in overnight and had a MRI scan and that came back all clear too the neurologist came to speak to me too I was discharged and sent for a outpatient EEG few weeks later I had an EEG and had multiple absent seizures then a few weeks ago I was in a absent seizure for 20minutes and then I started to have tonic clonic seizures whilst my mum was driving so she parked up and my auntie came as her son has seizures so she knows what to do my mum was all new to this and because the tonic clonic seizures where lasting for minutes and I wasn’t coming around my mum called an ambulance again the first responders came then a few minutes an ambulance we arrived at the hospital and I continued to have multiple tonic clonic seizures they decided to keep me in hospital until Monday because that’s when the EEG results were due they didn’t want to send me home because I was having 10 seizures every hour and I needed oxygen as I hold my breath during a seizure and they were lasting minutes the neurologist came to see me again on Monday afternoon my EEG results came back all clear meaning I don’t have epilepsy I have non epileptic seizures and they are caused by my FND due to my FND I’ve been having tics and I am in a wheelchair or using crutches crutches are more for getting around the house and in and out of cars the wheelchair Is for public places so I don’t have to be stuck in the house 24/7 but I don’t understand what’s going on with my legs I can walk with crutches but when I slowly put the crutches down and try to walk I can’t even move my foot or even a toe I just don’t understand but I do put a lot of weight onto my crutches I’m exhausted and I’ve never felt more alone, hurt and exhausted in my life and I never ever needed that certain person as much as I do now yes he was a prick but on his good days he made me laugh the most important he made me feel like the safest girl alive and with all of this going on I just need him not him because he can be horrible at times but I need that safe feeling again I miss his messages just telling me everything is going to be okay he’s got me but in reality he let go of me and went with a slag I’ve also lost a friend but I don’t want to be a friend with someone who try’s to make her condition out more worse and refuses to accept we have the same condition and she thinks I’m faking it because apparently we both can’t have it I’m just exhausted I don’t know how much more my body can take physically and how much my mind can take.