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polymorphic light eruption (PMLE)
Former Member
Posts: 1,876,323 The Mix Honorary Guru
Has anyone have this? if so do you know of anything that helps with the skin,
We've just found out Theo has this and his entire body is covered in the "hive" like bumps which are very very itchy, we have cammonile but wondered if anyone knew of anything else that helps, obviously he cannot go out in the sun without being covered up but some help tp releave the symptoms would be brilliant,
I'll post some photos in a lil while.
We've just found out Theo has this and his entire body is covered in the "hive" like bumps which are very very itchy, we have cammonile but wondered if anyone knew of anything else that helps, obviously he cannot go out in the sun without being covered up but some help tp releave the symptoms would be brilliant,
I'll post some photos in a lil while.
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She was also advised to go out with her skin uncovered in the spring, while the rays are weak, so she can build up resistance. Not much help now, but for next year
Thanks, the docs and apparently most of the medical profession do not know much about it but believe it is an alergic reaction/protein reaction or something like that to UVA/UVB rays,
Docs have given him a 1% Hydrocortozone HC (sp) and we have a not fragrenced total sun block by E45, hoping that will help,
thanks for the advice about going out in spring, we'll try that, i've been monitoring UV levals for the area
It says
the doctor is hoping the summer will me miserable and horrible, I believe we're the only people looking for a wet summer lmao, he is hoping Theo's immune system will sort itself out and not happen next year.
Oat and Honey Milk Bath
½ cup rolled oats
¼ cup powdered milk
2 Tbsp. honey
Place all ingredients in a small, natural fabric bag (muslin and cheesecloth are great choices). Hang the bag under the faucet as you fill the tub, so running water disperses the goodness throughout your bath.
from here http://www.pioneerthinking.com/oatmealbeauty.html
That is supposed to work wonders with chickenpox and might help with this as well. Lots and lots of cammonmile and if you have any try and get Theo to wear cotton gloves at night so he doesnt scratch his skin in his sleep.
It does sound like your GP is being helpful as well.
He seems to be getting better slowly. I do not see him building up a total immunity towards it but hopefully as it was the first time this was the most severe.