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Hms
Former Member
Posts: 1,876,323 The Mix Honorary Guru
I was just curious to see if anyone here has Hypermobility Syndrome? (HMS)
My physiotherapist mentioned it at my last session because he saw how far back my knees bent. I'm seeing a specialist soon about my RSI and would like to talk about a diagnosis for HMS.
Just wondering if any thesiters have the condition and how it affects them?
Ilora x
My physiotherapist mentioned it at my last session because he saw how far back my knees bent. I'm seeing a specialist soon about my RSI and would like to talk about a diagnosis for HMS.
Just wondering if any thesiters have the condition and how it affects them?
Ilora x
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My son has it worse than me. his fingers just go all over the place. It means he has trouble with holding cutlery properly, has trouble holding pencils correctly, therefore cant write or draw at the same level as his peers, and has trouble with buttons and stuff, but hes getting better. The physiotherapist says there isnt much they can do. Just has to find his own techniques round it.
Apparently it can make people get achey more easily. You might find your legs ache more than other peoples when walking. My sons always complaining of that, but i dont know whether its true or not (he could be just being a moany 5 year old) after all, its not his legs that are most affected.
This has all happened in the space of 6-7 years and now I've found out there may be a reason why I'm falling to pieces!
It's a known medical condition - it's not just about being bendy. A lot of people suffer from Arthritis because of HMS, and even worse.
Ilora x
It IS a known condition and it CAN have a big impact on your life depending on how extreme it is. As i said, mine isnt that bad, i didnt even realise thats what I had until We realised my son had it - it just explained a lot. My sons does affect him more though.
Is it Ehlers Danlos Sydrome by any chance?
(It's just that I've done a little bit of technical work on the diagnosis in kids.)
My mum has flexible fingers too, mine are worse, my sons are even worse. It definitely seems to be hereditary, but not EDS like you said.
It is a case of been too mobile (Hence the term hyper). It is a disorder of the connective tissue , Collagen which makes up every part of your body. It is the body's glue to put into simple terms. People with these connective tissue disorders tend to have a more fragile collagen. This can cause many problems from partial and full dislocations of joints. nerve, muscle and joint pain. Many do not gain benefit from local anesthesia - though the reason isn't known why, though it appears to be related to lack of effect with many painkillers.
With Ehlers danlos syndrome it is common to have fragile skin. Some of us only have slight fragility with hyper - sensitive skin, but in the most severe form (Vascular Ehlers Danlos) the skin splits very easily and cuts will continue to spread after injury. (I have Hypermobile Ehlers danlos syndrome, but do not have severe skin involvement. However I still have a lot of problems from scratching my skin raw on normal bedding so I can only sleep in satin. I cut my leg the other day using a blunt and very soft spatula to clean depilatory cream off, this will probably scar even though it only looks minor. I have to be uber careful with my splints and braces and wear something soft under them or they will tear into my skin.) The most severe type of Ehlers Danlos (Vascular) is a life limiting condition, it causes internal ruptures of the major organs - intestines, aorta and brain hemorrhages. This type also suffer from lens dislocations. Due to having to wait over 20 years for a diagnosis I have done a lot of damage to my body and my spine is beginning to fuse. I have been in a wheelchair for the past 2 years. If I walk for more than 5 mins I partially dislocate my ankles, knees, hips and a lot of my vertebrae. I end up with severe nerve pain which no drug has fully eased to date.
Hope this explanation helps a little, sorry it is soo long
On the plus side I can bend my elbows in a funny way that makes people cringe!
whoa, that made me sad. Can't say more that deepest condolences. I guess you appreciate your health (or little owies) when you have a comparison to someone who is really 'handicapped' so to say. Sorry, mate.
/e: oh lol old thread.
Ilora-Danon seems we will never be lonely with this condition, there's so many of us out there. Seems the rheumatologist think it's 3 in 10 people who have these conditions :shocking: