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Trigger warning mentions of health / seizures

Summerjune15Summerjune15 Posts: 171 Helping Hand

I haven’t been on here for awhile and I haven’t needed to I’ve been doing so well and for a moment I forgot about TheMix which is such a change from needing it every day but my health has taken a turn for the worst causing my mental health to be worse I was put on medication that caused temporary psychosis and made my seizures a whole new level I stopped breathing until my face went purple being sick during seizures struggling to breathe FND and the seizures take over my life my illness takes over my life every single day and one day I’m scared it might take my life yes functional seizures aren’t considered dangerous as epileptic ones but what about the people like me who stop / struggle to breathe during functional seizures out of all the other symptoms and I’m generally scared that one day it might take my life as some doctors / paramedics don’t take functional seizures seriously and I’m terrified that will cost me my life one day. Am I being dramatic?

Comments

  • NathanNathan Community Connector Posts: 2,966 Boards Guru

    Hey @Summerjune15, it's donnerkebab if you remember me at all, cause of the username change on here.

    You're not overreacting. That is an understandable and terrifying fear to have. It's not dramatic at all, full stop, and you should not ever have to feel like your concerns or fears are unreasonable. You 100% deserve to be taken seriously.

    Doctors and paramedics can truly be assholes at times, i know that one from personal experience, and for them to not take your fears and concerns seriously is bang out of order. But there are options available to put in complaints possibly, given how they're treating you, and it might make them take it more seriously, if that's a path you want to explore potentially? It really sounds like an immensely traumatic experience to struggle for breathe during these seizures, and i'm so sorry that nobody is taking your concerns as seriously as they should.

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