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Rant of the day🙈

Summerjune15Summerjune15 Posts: 154 Helping Hand
in Health & Wellbeing
I haven’t really come to terms with the word disabled yes I am a wheelchair user and I use crutches when I’m not in my wheelchair yes I am disabled and I’ve been having a really hard time to come to terms with why can’t I just be Libby who has a condition called FND instead of disabled I’ve also have completely lost my identity since having functional neurological disorder and I’m not the only one I’ve read loads of stories about people losing their identity since being diagnosed with FND I do miss the old me I was a loud and bubbly person and at that time I kept thinking to myself I’m too much for people and overthinking about how others think about me but now I think to myself as soon as I get better I’m going to live like as if no one’s watching I’m just going to live not for the sake of surviving but really live my life but this week I’m living not for the sake of it I’m living my life Wednesday I’m going birthday shopping with my mum and Nan Thursday I’m looking around my possible new college eeekkkk then Friday I’m celebrating my friends 18th and party like I’ve never partied before and then a week today is my big 18th I find that if I’ve got plans with friends or family I feel a lot better mental health wise as when I’m just stuck in the house I find that my mental health goes a bit down hill so I’m definitely going to be getting out more even if it’s just going in the garden I miss taking my dog out for a walk bless her she’s still so scared of my crutches and wheelchair it’s quite a sunny day I might ask the family if they want to go on a walk with Bunny they can walk and I will wheel haha I’m so grateful for my wheelchair as it gives so much freedom my crutches do to but only for getting around houses and in and out of the car so I’m quite limited with crutches and they do not keep me save when having a seizure the bump on my head will tell you that haha I’m starting to come to terms with mobility aids and I was thinking of maybe decorating my wheelchair and crutches I’ve seen other wheelchair users to it and I’m quite a artsy crafty type of girl but I didn’t know if I was aloud or not my parents have no problem with it but I don’t want people to think oh look at her decorating her wheelchair she must want to be in one I’m just overthink the situation and looking for reassurance that it’s fine to decorate mobility aids but that’s my rant over I hope you all have a good week🫶🏼

Comments

  • 63marie63marie Posts: 15 Settling in
    Hey, I totally hear you about having a hard time coming to terms with using the word disabled, I find it really hard too. If you prefer to be known as just Libby, that's I think that's totally valid! It can be really tough when you feel like so much of your identity has been taken away from you, but remember, you're so much more than your illness, even though I know it can feel so consuming at times <3 That sounds amazing about what you've got planned, I hope you have a good time and an amazing birthday !! And I think it's a great idea to decorate your wheelchair and crutches, it could help them feel less clinical maybe? I get you about overthinking it, but if it'd help you in any way, then I'd deffo go for it! I hope you enjoy all the things you've got planned :)
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