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Conditions affecting my life.
Animalloverb
Posts: 545 Incredible Poster
I know I spoke a bit about this earlier but I want to talk about it in slight more detail. I hope it doesn't bother any of you that some of it is repeated.
I have a condition called Epilepsy. I experience multiple types of seizures- tonic clonic, focal, absence, and myoclonic.
This affects My daily life, I am at risk of status epilepticus due to how often they happen and how they can often end up being prolonged so I need an ambulance.
I am on such a High dosage of medication, I take 1000mg twice a day and I still experience odd seizures but my epilepsy specialist won't do anything and keeps telling me that the ones I am having aren't serious. I have asked them to change my medication as the one I am on clearly isn't working but they have refused and they have also refused to give me rescue medication to avoid me going into status.
Before long my epilepsy will take away everything, it already has changed my life from the day I was diagnosed, I had to change my career slightly and that hurt me so much. A lot of jobs refused to take me because of my condition aswell. My epilepsy can also affect my memory.
I am so fed up and I really wish I didn't have this condition. I get upset about how hard life is, and how horrible this condition is.
I also don't just live with epilepsy, I live with so many other conditions too that affect my daily life. Such as my vision impairments. I have a nystagmus that causes my eyes to move uncontrollably which leads to things being very blurry for me. I also have another eye condition, I am not sure on the name as they are so hard to remember spellings of, but it affects the nerves at the back of my eyes, I have to get frequent checks as I can go completely blind at anytime.
I also have hearing impairments, I am completely deaf in one ear and partially deaf in the other. I get ear infections very often due to a bone that is damaged in my ear and due to a hole going all the my through my ear drum. I am awaiting surgery to hopefully help and make me have less infections but they can't do the surgery until I no longer have an infection. I let them know that I no longer have an infection and by the time they book my surgery I get an infection again.
I also have a condition that affects my feet. I can develop extreme pain to the point where I cannot walk. I have been given some specialist equipment to use to help avoid the condition flaring up but it does still happen.
I also have Autism, A social anxiety disorder and PTSD. I am not going to get into those though. I am more down about my epilepsy than anything else.
I have a condition called Epilepsy. I experience multiple types of seizures- tonic clonic, focal, absence, and myoclonic.
This affects My daily life, I am at risk of status epilepticus due to how often they happen and how they can often end up being prolonged so I need an ambulance.
I am on such a High dosage of medication, I take 1000mg twice a day and I still experience odd seizures but my epilepsy specialist won't do anything and keeps telling me that the ones I am having aren't serious. I have asked them to change my medication as the one I am on clearly isn't working but they have refused and they have also refused to give me rescue medication to avoid me going into status.
Before long my epilepsy will take away everything, it already has changed my life from the day I was diagnosed, I had to change my career slightly and that hurt me so much. A lot of jobs refused to take me because of my condition aswell. My epilepsy can also affect my memory.
I am so fed up and I really wish I didn't have this condition. I get upset about how hard life is, and how horrible this condition is.
I also don't just live with epilepsy, I live with so many other conditions too that affect my daily life. Such as my vision impairments. I have a nystagmus that causes my eyes to move uncontrollably which leads to things being very blurry for me. I also have another eye condition, I am not sure on the name as they are so hard to remember spellings of, but it affects the nerves at the back of my eyes, I have to get frequent checks as I can go completely blind at anytime.
I also have hearing impairments, I am completely deaf in one ear and partially deaf in the other. I get ear infections very often due to a bone that is damaged in my ear and due to a hole going all the my through my ear drum. I am awaiting surgery to hopefully help and make me have less infections but they can't do the surgery until I no longer have an infection. I let them know that I no longer have an infection and by the time they book my surgery I get an infection again.
I also have a condition that affects my feet. I can develop extreme pain to the point where I cannot walk. I have been given some specialist equipment to use to help avoid the condition flaring up but it does still happen.
I also have Autism, A social anxiety disorder and PTSD. I am not going to get into those though. I am more down about my epilepsy than anything else.
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