Non epileptic seizures

Summerjune15

Thursday afternoon 2pm I started to have a seizure before the seizure I was complaining to my friend about my head feeling funny and I felt confused and I didn’t feel like I was there I felt like I was dreaming few minutes later my eyesight went blurry and my breathing was rapid my friend and staff noticed and they helped me on the floor and then few minutes later I was having a non epileptic seizure I had 3 big seizures and the rest were absent seizures staff counted 3 big seizures and then 12 absent seizures first responders came until the ambulance arrived I lost the ability to speak for about an hour the ambulance arrived and i was trying to explain to my mum I can’t feel my right leg so they helped me in the wheelchair and I had 4 absent seizures in the ambulance counted by the paramedic so 19 seizures before I even arrived at the hospital keep in mind I’ve never had seizures before this only fainting episodes I’ve had CT scan MRI scan tests and they are all completely fine I did have to stay in overnight but I haven’t had big seizures since Thursday when I was in college only absent ones but my leg has small progress I can feel it but it’s a heavy numb feeling it’s hard to explain but when I’m walking I have to drag my leg and put most of my weight on my good leg I am going to a seizure clinic and having a EEG but I can’t wait that look to find out what’s wrong with me I’ve searched a lot and I’ve found 3 things that stand out to me TODDS paresis, NES (non epileptic seizures) and FND (functional neurological disorder) any advice would be really appreciated thank you🫶🏻

Durhamjaide

I can relate the last time I had a seizure was at the beauty salon a couple of weeks ago. I had just started migraine meds so we are thinking it was that so I have stopped the migraine medication.

We had to get the ambulance out it was my typical seizure. The first one my support worker witnessed as well.

Summerjune15

Update my leg has come back and I can walk so that’s really good still having seizures though we think I have PNES but it will take along time for me to get the diagnosis😕

Katie

Oh @Summerjune15 this sounds so scary to experience. Is this the first time you've had a seizure? It sounds so exhausting and frustrating to not be in control of your own body. I'm really glad to hear the hospital are looking into it and trying to figure out why it happened. Sending you hugs

Summerjune15 wrote: »

Update my leg has come back and I can walk so that’s really good still having seizures though we think I have PNES but it will take along time for me to get the diagnosis😕

Also so glad to hear the feeling in your leg has come back and you're able to walk again!! Has your speech come back too? I hear that you're thinking you might have PNES but it'll take a long time to get a diagnosis. I hope they're able to get your seizures under control and support you and your family as you go through this.

The community are here for you Summer Please do keep us updated!