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No one will come to see me in hospital
Former Member
Posts: 1,876,323 The Mix Honorary Guru
I'm in hospital 40 mins from where I live, in a small rural town where I used to live and where I have a few friends - I've even directly asked them I'd they would come and see me and I've gotten a no/busy/etc response from all of them. This illness has pushed so many people away and I feel so lonely - Riotbf is coming 60 miles or more on Sunday, but even my best mate hasn't called me like she said she would. I know I'm feeling crappy as it is but I'm so lonely surrounded by nurses without time to chat, elderly women who can't hear me, and the Chaplin who's very religious...
What can I do? I'm getting really down from this
What can I do? I'm getting really down from this
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Sorry to hear you're having a tough time at the moment x
Try and hang in there *hug* I know it's not exactly the same but you've always got us on here too.
Still in a lot of pain haven't gotten out of bed since Monday
I'm sick of this place I want to be at home even if I'm just stuck on the sofa -
But they won't let me go until I can walk to the loo which I can't yet
My best friend has meant to call me two days on the trot and forgotten. And I'm getting paranoid that Riotbf might cheat on me or break up with me whilst I'm in here, which is probably a load of crap but it's running around my head all the same
How horrible to be stuck there with so little to do, and so little being done. It must make you feel pretty powerless?
As you're still able to post here, I'm guessing you have access to some kind of device. The internet is full of things to help pass time (too many sometimes!) I realise it's not the same as human contact, but maybe films/shows/courses etc might help pass some of the long hours?
I know some hospitals run (non-religious) visitor schemes using volunteers. I'm not sure if your hospital does, but might be worth researching?
It sounds pretty frustrating that the med staff don't seem to be doing much. Do you have a lead doc who you could talk to about their plan of action?
I hope your friend remembers to phone soon
I am sorry to hear about your experience in hospital, it must be very frustrating. It's good that you have got people behind you who is supporting you with the hospital.
I hope your blood pressure gets better *hug*
I hope that you get out on Wednesday so you can be back home where it is more comfortable for you.
Let us know how you get on with the physio.
purple_rain
Blood pressure has gotten a little better, still on the low side though, not so dizzy though which really helps. I'm managing to stand although my knees have given way when weight is put through them on a couple of occasions.
I just want to see if i can stop being in so much pain.
Seeing the physio this morning - managed to do a few steps with a frame but my lower back hurt like hell though.
That's really good that you managed to take a few steps with the frame. I know it must have hurt loads with your back but you are making a good start and you should be proud of yourself *hug*
Let us know how you get on this week.
purple_rain
Good to hear too that they're referring you to a neurologist. The idea of MS, no matter how hypothetical, must be pretty disturbing, but it sounds like the right steps are being taken.
Did you have any visitors?
Just calling all the neurologists I can today to see if anyone will give me an appointment ASAP to sort me out
Sounds like a plan - let us know how it goes
Spent the day calling neurologists up and down the country - my mum's godmother has agreed to pay for me to be seen privately but that's £250 before any tests are done. And I'm struggling to get access to my medical records before I can see one. It's just crazy! And I'm still in bed, still taking morphine, still in huge amount of pain and sleeping and crying a lot.
I did say to my mum today that if it wasn't for her and Riotbf right now I wouldn't be here any more. They are all I've got to keep me going right now.
That does seem pretty steep! But at least you'll be able to get a professional opinion, which sounds like the best thing to do at this point.
I'm glad the pain's eased off a little, though not being able to think straight must be pretty frustrating.
I hope the appointment goes well today