Update on seizures

Summerjune15

Thursday i went back to the doctors because I was still having absent seizures every 20-30minutes and some were lasting over 5 minutes the day I had a 5 minute seizure my mum wanted to take me to hospital she rang 111 and explained that they won’t be able to do much they will only do the same scans etc and plus I was exhausted so me and my mum agreed we can go home and go to the doctors in the morning the doctors appointment was quite positive but negative at the same time I had a few absent seizures and then 2 big seizures ( we call them the big seizures I don’t know the right term of word for them ) the doctor wanted me to go to a and e too but he knew I really didn’t want to and anxiety makes me more likely to have seizures so he called the hospital and they said I can go on temporary medication which is good news I’ve been on the medication since Thursday but when I was in the waiting room I started to have a big seizure and my mum wasn’t there at the time and of course when your having a seizure you have no control over your body when I came out of it I started to cry and I was really upset because of course people saw and it’s a horrible feeling having people around you that you don’t trust or don’t know when your having a seizure but I’m still having quite a lot of absent seizures even in the medication but they only last up to few seconds or a minute which is a big improvement my EEG is on Friday the 21st so I will have to stop the medication tomorrow just in case it interferes with the EEG results I’m not looking forward to the EEG I know I’m going to have a sensory overload but I’m looking forward to getting some results if the EEG comes back normal then it’s a neurological condition causing my seizures so I don’t know how they will find out what the neurological condition is but the absent seizures are causing pain I’m biting my tongue and my muscles seize up when I’m having a absent seizure and I think I’ve pulled a muscle and I’ve got cuts all over my tongue and I’m exhausted but I am seeing a friend today that I haven’t seen in a long time so i can’t wait and she knows about my seizures so she knows what to expect and hopefully I don’t make her panic I am a burden to a lot of people recently I just came here to rant as I usually do thanks for reading this very messy rant😂🫶🏼

stardust444

@Summerjune15 im sorry to hear about this, it sounds like a lot to handle and I can understand why you’re feeling overwhelmed! I wish you luck and I hope you have fun with your friend 🫶

Katie

Hey @Summerjune15 thank you for the update on how you're getting on

I agree with @stardust444 , it really does sound like a lot to handle. I don't think you're a burden either Summerjune - you're experiencing a pretty scary health issue that you personally don't have any control over. You've got a lot going on, and it's not your fault this is happening to you.

Sending hugs your way (if hugs are your thing) And I hope you have a lovely time with your friend. I love having those big catch ups when you haven't seen a friend for a while, and it sounds quite comforting being able to spend quality time with someone who already knows about your seizures.

We're here if you want to keep us posted on how your EEG goes - I really hope you can get some answers soon