Head Injury complications, just needing support.

Former Member

I'm struggling at the minute with a lot of health problems, I've was in and out of hospital when I was a teenager with complex medical needs (I'm now 19) and I've been doing quite well for the past few months but about 6 weeks ago I had a fall which gave me a nasty head injury, not too serious but I was admitted for observation and I was doing well for a few weeks afterwards, getting my strength back and even went back to work for a few days but then there was complications and I got admitted back into hospital and I'm now in a wheelchair and have been for the past month as I've just lost all the strength in my legs and anytime I try to stand and walk my legs give way and my blood pressure has gotten so low and my heart rate so erratic my body can't hold itself up.

I'm talking to my doctors most days and we are changing some of my medication I'm already on and waiting to see the specialist neurologist which is good and every day is progress and small steps to getting better it's just hard in the meantime, I've coped with a lot of illness throughout my life but with this it's taken everything out of me, even the smallest of things is so hard.

I live on my own and have for 6 months now and although I have good friends around me and family when they come up it can still be such a struggle, I miss work so, so much and I miss being able to walk around, do things for myself and having a routine, something to motivate me and keep me going. I try to be positive and I am trying, it's just sometimes I just want to hide under the duvet and not come out but I'm trying to be strong.

Sometimes I just wish I could have a hug from someone, where they could hold me and just tell me it's all goanna be okay, that I'm goanna get better and I will have a bright future and that I've just got to take small steps and focus one day at a time. I guess I'm always the strong one keeping everyone else up but now I really need somebody to hold me up and help keep me strong.

Former Member

Hi StarWonder and welcome to thesite

I can't imagine how hard it must be for you right now, it must be incredibly scary and frustrating. I'm so glad you've found the site, I find your attitude to your situation really inspiring. Is there any additional support your doctors could provide you? Have you asked?

Sending you lots of virtual *hugs*

Dp

Former Member

What were the things you liked doing before your accident? What kind of things generally interest you?

I had a patch of time when I was recovering from surgery and was very limited in what I could do. At times it drove me around the bend - but there were things I found that helped.

Have you got a lovefilm/Netflix account?

Former Member

Hey Dollypop,

Thank you replying and for the virtual hugs, defiantly needed! Sending loads back with all the positivity, hope and love I can muster. I'm really glad I have too, I've had support when I was younger through forum's but when I turned 18 then 19 it stopped and it was like 'your an adult now, deal with it all on your own' but you don't just wake up and suddenly everything is fixed, and this site is so good at grabbing that age gap from 16-25 and giving support in all different ways which is what is needed.

At the moment I'm just waiting for the neurologist appointment and in the meantime my local doctor is on call if I need him and I have been given support by the Red Cross who have been helping me with the wheelchair which I'm so grateful for and I might ask one of the Red Cross volunteers to come and visit me as they do that and help me, I guess I'm just quite stubborn, I'm that sort of girl that wants to do everything herself, help everyone else before herself and to be honest I grew up quite quickly when I was younger for numerous reasons so I'm like 19 going on 25, But I know I need to accept help too, I guess I find it hard being vulnerable and letting people in. But one of my friends came round on a surprise visit yesterday which was lovely and we sat and had a catch up which was just what I needed, I think I just need to be reminded that 'I'm goanna be okay, I will get through this and that I'm not on my own

Hope your okay lovely?
x

Former Member

Hey Growls,

I love the name, thank you for replying it means a lot.

I loved work before the accident, I do paid and voluntary work with children and young people within youth work in my community and I'm a health care support worker for young people and adults with learning disabilities and severe brain injuries.

And now suddenly I'm the patient being treated, the one people have to care for and I'm just so used to caring for others I find it so hard, mostly because I'm stubborn to accepting help but because I find it hard being vulnerable whether physically or emotionally.

I like arts and crafts, I have a diary that I like writing and I have made lots of scrapbooks in the past with lots of collages and poems, I love writing poems, I find it a good way to express how I feel you know when you can't speak it?

I guess I'm just very board too hehe, I need like one of those 100 things to do when your board (inside though) book/list?

No I haven't, is it good, does it cost money?

Hope your okay and having a good day,
x