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possible stomach ulcer

Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
ok, seeing as the doctors just wanted me off the ward, they didn't tell me much about what to do and not do, apart from the words: you might be best to not do much for the weekend...

so any ideas as to whats good and not so good to eat and what i can do for exercise cos i feel very lazy, but i'm in pain just walking up and down stairs...so i'm not sure what i should be doing...

help!
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I'd say do as little as possible... your body will probably let you know what's too much for you.

    Not sure about what you should eat though.

    Hope you're better soon. :( *hugs*
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I've had ulcers before (side effect from steroid meds and painkillers) and pretty much just carried on life as normal, including exercise. I was prescibed lansoprazole which helped a bit, but other than that it was just a matter of time.

    Try avoiding hot or spicy food, don't drink or smoke and don't take ibuprofen or aspirin, cause they'll aggravate it.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Normal food, but be nice to your stomach nothing really hot/spicy and make sure you chop it up and chew it well (no point in getting indigestion on top of it).

    And like Kaffrin said, no drinking or smoking.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I would also want to know why they cannot do endoscopies at the weekend?

    But for information, they wanted you off the ward because medically yo udon't need to be there.

    As an aside, rather than say "they didn't tell me much about what to do and not do", couldn't you also say "I forgot to ask.."?
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    wtf MOK, what lay person knows what to do when you have an ulcer and are discharged from a ward? I think that's fucking bad healthcare communications (for which I am just about to win an award, fingers crossed.) Even if it is assumed that people know what to do when they have an ulcer, though that's an odd assumption to make, the patient should be questioned to see if they know their aftercare protocol before they're released.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    MoK, as a patient, and at that a young adult, why on earth would it cross your mind to ask why they can't do endoscopies at the weekend?

    Moreover, if you're being sent home you should be given full information and then they should check you understand it, although my experience has been that once someone has said you can go the ward staff just want to see you gone. A decent discharge service would have explained things without the ILL patient needing to think of everything and ask all the questions.

    Health service managers do need to remember that before they blame patients for getting the wrong end of the stick and not asking enough questions that the patient is the sick person who needs looking after and the staff should be getting the right info across without being prompted.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    MoK, as a patient, and at that a young adult, why on earth would it cross your mind to ask why they can't do endoscopies at the weekend?

    Which is why I said that "I would want to know", rather than "you should ask"
    Health service managers do need to remember that before they blame patients for getting the wrong end of the stick and not asking enough questions that the patient is the sick person who needs looking after and the staff should be getting the right info across without being prompted.

    I wasn't blaming her for the lack of information. I agree that she should have been given it. However, personally, I also think that patients have some responsibility in the doctor/patient relationship. Standing up for yourself and not being shoved out of the door without enough information is part of that.

    As you say, they are the people that are sick, they are the people at risk. This is why when I am in that position, I tend to make damned sure that I ask everything that I think I want to know.

    NB I also said "couldn't " she have said that she didn't ask, not "shouldn't". A semantic difference I know but it's designed to make her think about her needs rather than saying that it's all her fault that she wasn't given the information.

    What stops someone from asking the question they want answers to?
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    i only got 5 mins to talk to the consultant
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    And you're usually still taking in the first bit they told you by the time they leave which gives you no time at all to think and then ask the useful questions.

    And it's not like after the doctors left the nurses give you any opportunity to get answers to anything you think of later. Most people who are sick enough to be in hospital tend to find that they feel so rough that standing up for themselves and fighting the system to get more information is rather tricky.

    Subtle wording differences are all well and good when you're in P&D, but when you're talking to someone who's feeling rough it's a bit different.

    Imagine being 19/20 and on your own in a hospital, and feeling like hell all over, it hurts to move, you feel rough and you're probably scared because you don't know what's wrong.

    Not many people in that situation can think fast enough and can be demanding enough to think of everything they want to know on the spot and ask it and then keep asking until they get all the answers.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Back to the useful stuff....

    If you've still got questions, try NHS direct, the website doesn't have anything useful but you might get some friendly answers from a nurse on the helpline.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    i only got 5 mins to talk to the consultant

    Yeah, that sounds about right.

    Like Scary said, try NHS Direct for more questions... alternatively ring the hospital and ask to speak with the on-call team.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I'd try NHS Direct first. Often the on call team will refuse to talk medical over the phone, they won't say much without having the patient in front of them, whereas with NHS Direct advice over the phone is what they are there for.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    And you're usually still taking in the first bit they told you by the time they leave which gives you no time at all to think and then ask the useful questions.

    And it's not like after the doctors left the nurses give you any opportunity to get answers to anything you think of later. Most people who are sick enough to be in hospital tend to find that they feel so rough that standing up for themselves and fighting the system to get more information is rather tricky.

    Subtle wording differences are all well and good when you're in P&D, but when you're talking to someone who's feeling rough it's a bit different.

    Imagine being 19/20 and on your own in a hospital, and feeling like hell all over, it hurts to move, you feel rough and you're probably scared because you don't know what's wrong.

    Not many people in that situation can think fast enough and can be demanding enough to think of everything they want to know on the spot and ask it and then keep asking until they get all the answers.

    I knwo, I;m not stupid, even though I am a manager.

    Part of the problem, though, is that people have such faith in doctors and nurses and assume that they will be told everything they want to know. Sadly experience has shown me that this isn't the case.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Very sorry, didn't mean to imply you were stupid, but most people don't realise how bloody difficult it is being on your own and sick in a hospital as a very young adult.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I think it's more that they forget.

    But we have this culture that doctor will look after my interests, he knows best etc. Maybe I am just too cynical, maybe I am just a realist.

    However, I remember that Shipman, Ayling and Ledward were all loved by their patients. As, I am sure, were the Glasgow team...
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    edited-read the post in general.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    phoned the hospital, no on would even pick up the phone! was waiting for 20 mins

    just got myself quite upset...

    went to the doctor, and she basically said that the only reason i got the ulcer is because i'm over weight...i'm about a stone and a half over weight...not really much...
    so she wants me to be going back to the gym 4 times a week, and calorie counting so that i only have an intake of 2000 a day. it hurt just to walk to the doctors, let alone going back to the gym. I'm getting bad side effects from the meds, and she wouldn't give me any painkillers, she said i could buy some paracetamol over the counter...

    so i feel pretty much house bound, fucking isolated, only had 1 person to see me and he's not going to be able to see me till the weekend, so i'm feeling really shit...

    I'm gonna have to push myself to go to the supermarket now, as i've got no one to help me.

    i really just feel like sitting now and crying my eyes out because i can't do much to make myself better, and it seems like i can only make things worse...i have shitty luck...
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    phoned the hospital, no on would even pick up the phone! was waiting for 20 mins

    :banghead:

    Sometimes I just despair... why can't some hospitals realise that people don't just need them 9-5 Mon-Fri...
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Aww hunnie pie.

    I'm guessing not, but I suppose there isn't anything you're post 18 worker or whatever they are called can do to help is there?

    One thing has just sprung to mind, and may or may not work, but there may be specialist nurses at the hospital who can be absolutely fantastic. They do advice over the phone sometimes. In my case they were the colorectal nurses, but not sure if you'd be under that department or another one.

    You are a little overweight, but not disaterously so, and the gym would be a good idea, but realistically that's only something you can do when you are well again.

    Sounds like you are in need of lots of tlc and sympathy, although getting it seems somewhat harder. Is there a practise nurse at your GPs? Ever seen them? Are they nice? Often they do a lot of the health and lifestyle stuff and they may be a lot friendlier than the GP was.

    Big hugs.

    xx
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    so she wants me to be going back to the gym 4 times a week, and calorie counting so that i only have an intake of 2000 a day. it hurt just to walk to the doctors, let alone going back to the gym. I'm getting bad side effects from the meds, and she wouldn't give me any painkillers, she said i could buy some paracetamol over the counter...

    When I have had them, I'm definitely uncomfortable, but it's not really pain, and it deffo doesn't stop me from carrying on with life (just feels like bad indigestion), so if you're really in so much pain you can't get around, I'd go back and ask for something else to be done. I also had absolutely no side effects from meds, so that's something else you might want to check up on (are you on the right dose, can you have another type, etc)

    Having said that, there aren't many painkillers they can give you that won't make the problem worse. Paracetamol is your safest bet. If you are taking max dose paracetamol and still struggling, so back and ask for them to give you more help.

    I've dealt with some fabulous parts of the NHS in my time, but I've also dealt with outrageously shoddy parts too, and if they are not treating you properly you just have to keep going back until they are. Sometimes you just have to nag to get a result, as for whatever reason, some medical types are in the habit of fobbing off.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    ok, so i'm going for a colonoscopy on monday, there was a cancelation...

    i've looked at my discharge notes,and they seem to think it's further down from my stomach...couldn't decyfer all the medical jargon, but it doesn't look good...

    the practice nurse at my GP isn't great, my GP is lovely but she's been on leave...so i'm getting ocassional TLC from the ex, who is actually being supportive considering, and thats it...

    i managed to clean a little bit of my flat, but i'm getting so tired, and very very down...i was crying a lot of today...my life seems like a never ending series of crisises
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Sounds shitty.

    What medication did they give you? 30mg lansoprazole? as kaffrin said, ulcers arent usually that painful and the meds dont usually cause side effects so bad.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    yep, and laxatives which aren't working!

    i've been very drowsy, and dizzy, and very down and i've been loosing my hair as well much more than usual...

    i've got to wait a week, i can do that much and then the consultant will hopfully sort me out..

    i'm just worrying what it could be if it's not a stomach ulcer..crone's? :S
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Well, i dont know what your symptoms were or what made you end up in hospital.
    I had a quick look on netdoctor.co.uk and it said ulcers can can cause severe abdo pain.
    I know from experience that heartburn can be excruciating, i could feel it from literally my throat down to my stomach.

    http://www.netdoctor.co.uk/diseases/facts/pepticulcer.htm

    I had the Helicobacter Pylori that the link mentions. I went to the doctor the other week after my 4th episode of unbearable heartburn. She gave me Lansoprazole, which worked immediately and took blood to test for H.Pylori bacteria. That came back positive so i had a course of 3 drugs to take for a week to eradicate it, because if left it can cause stomach ulcers.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    I'm guessing that they think it's further down that my stomach seeing as i'm now having a colonoscopy...

    Tbh, i've had colon problems all my life, so if they find out whats wrong and sort it then i will have a hell of a lot less to worry about...but the possibles do worry me
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Make sure you rest and dont over exert yourself. Laxatives can cometime take a few days to work in severe cases but o back to Dr or phone NHS if things dont sort themselves out in a couple of days. The stress is probably casing the extra hair loss. Take care.
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    i've been very drowsy, and dizzy, and very down and i've been loosing my hair as well much more than usual...

    Didn't you mention somewhere else that these were the side effects of what they've given you take?
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    the Lansoprazole yeah
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    Have they given you some Picalax now, ready for your scope?

    If they have, I wouldn't go too far from the lav after taking it...
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    Former MemberFormer Member Posts: 1,876,323 The Mix Honorary Guru
    thats what they were sending me in the post but i hasn't arrived so i've got to go pick it up....really not looking forward to this...and i'm getting no sympathy...
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